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Joelf

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  1. Construction of a Frailty Index (FI) as a Novel Health Measure in Systemic Lupus Erythematosus (SLE). The SLICC-FI may be a useful tool for identifying patients with SLE who are most vulnerable to adverse outcomes. PubMed, J Rheumatol, 2020 Jan;47(1):72-81. (Also see Symptoms and Complications of Lupus) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  2. Advances in the Treatment of Scleroderma (SSc): Autologous Hematopoietic Stem Cell Transplant (HSCT). HSCT can be considered as an option in carefully selected patients with rapidly progressive SSc who have a risk of organ failure. Medscape, 1/2/2020. (Also see Stem Cell Transplantation) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  3. Americans are binge drinking more, greatly increasing health risks. The rise in binge drinking increases health risks: accidents, disease and early death. NBC Health News, 01/16/2020. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  4. High Prevalence and Disease Correlation of Autoantibodies Against p40 Encoded by Long Interspersed Nuclear Elements in Systemic Lupus Erythematosus. These autoantibodies may represent an early immune response against LINE-1 p40 that does not yet by itself imply clinically significant autoimmunity. PubMed, Arthritis Rheumatol, 2020 Jan;72(1):89-99. (Also see Diagnosis of Lupus) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  5. Defining genetic risk factors for scleroderma-associated interstitial lung disease (SSc-ILD) : IRF5 and STAT4 gene variants are associated with scleroderma while STAT4 is protective against scleroderma-associated interstitial lung disease. Further work is required to understand the genetic basis of lung fibrosis in association with scleroderma. PubMed, Clin Rheumatol, 01/08/2020. (Also see Pulmonary Fibrosis Diagnosis and Genetics) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  6. The International Scleroderma Network thanks Jack and Elizabeth Lewis for their monthly pledge support! Posted 02/16/2020.
  7. Hi Carol, Welcome to these forums! I'm very sorry to hear that you're experiencing such severe Raynaud's symptoms and the link I've included does have lots of tips about dealing with the problem. Although I do have Raynaud's, thankfully it doesn't affect me as badly as you describe. I have found that it's very important to keep my core body temperature warm, as this does affect the severity of the symptoms I experience. I would suggest that a few light layers of gloves would be more effective than thick woollen gloves, but unfortunately, gloves are not desperately practical when used for daily activities at home. Kind regards,
  8. When Life Throws You Curveballs, Embrace the "New Normal". For patients with life-altering illnesses or anyone just getting older, it helps to roll with the punches and make the best of the here and now. New York Times, 01/20/2020. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  9. High Incidence of New-Onset Joint Pain in Patients on Fluoroquinolones as Antituberculous Treatment. There is a high incidence of joint pain in patients receiving antituberculous treatment, when fluoroquinolones are administered as compared to pyrazinamide. PubMed, Respiration, 2020 Jan 14:1-7. (Also see Extrapulmonary Tuberculosis) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  10. The International Scleroderma Network thanks Gilead for their sponsorship support. Posted 02/14/2020.
  11. Hi Inibini, I can sympathise a bit, because in the beginning my hands were very painful and my fingers were very swollen. I spent an absolute fortune having all my rings made larger, only to have to have them altered again when, due to my taking prednisolone, my fingers went back down again. I had bilateral carpal tunnel syndrome and had successful operations on them; in my case the carpal tunnel was entirely due to having scleroderma, so I would imagine that the operation for carpal tunnel is the same for people with or without scleroderma. However, I have no medical training and so therefore this is just my opinion. The best person to advise you is your doctor/scleroderma expert. Kind regards,
  12. Case Report: Spontaneous bowel perforation in the setting of colonic involvement with scleroderma (SSc). It is essential that clinicians faced with abdominal symptoms and signs in patients affected by SSc are able to quickly differentiate acute visceral perforation from benign causes. PubMed, BMJ Case Rep. (Also see Bowel Dysfunction) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  13. Cats and Risk of Schizophrenia. In the same study that found pet dogs reduce overall risk for schizophrenia, the researchers reported less positive news for cats. Healthy Living Magazine, January 2020. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  14. The International Scleroderma Network thanks Network for Good donors for their support! Posted 02/12/2020.
  15. B cell synovitis and clinical phenotypes in rheumatoid arthritis: relationship to disease stages and drug exposure. We demonstrate an ongoing B cell-rich synovitis in a larger proportion of patients with established RA that does not seem to be captured by standard clinimetric assessment. PubMed, Arthritis Rheumatol, 11/29/2019. (Also see Diagnosis of Rheumatoid Arthritis and B Cells and T Cells) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
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