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claude

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About claude

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  1. Doctor Wallace has been treating me for the last 20 years for lupus and he sent me to Clements who doesn't seem convince that I have scleroderma, in spite of all the symptoms, including tightness in the face, legs and arms. Thank you so much for taking the time to answer my post. Time will tell. Claude
  2. I've had lupus since 1980. In the year 2000, my lupus was in complete remission when I got bitten by a Lyme tick. My doctor affirfmed that there was no Lyme disease in Southern Ca. and that my aches and pains were related to the lupus. (He now changed his tune) It took two years before I was diagnosed with Lyme... In 2003 my tongue started swelling. I was told it was acid reflux. The skin all over my body started thickening, including my face. I got a biopsy and was told I had cutaneous scleroderma. But they cannot decide why my tongue is swelling since apparently, scleroderma does not
  3. Jefa, Heidi, Thank you for your warm welcome. I didn't want to overload my first post with information, but I should have mentioned that I have been diagnosed with lupus twenty years ago and that I have seen a rheumatologist ever since. In my case, I have always been able to control my symptoms with a right diet and natural anti inflammatories. In the year 2000, I was in complete remission when I developed a bull's eye rash on my leg. Since, at the time, I was surrounded by deer, I immediately thought of "Lyme disease". My rheumatologist poo-pooed the idea claiming that there is no Lyme
  4. Just wondering if anyone diagnosed with scleroderma has a swollen tongue. Mine has been getting progressively larger over the last few years. At the same time, the skin on my face and legs, mostly around the ankles, has been getting thicker. Also, the wrinkles on my hands are disappearing and they look shiny when I make a fist... I had a skin biopsy in France and was told that I had an overproduction of collagen and they diagnosed me with cutaneous scleroderma. Here in the States, I've had a couple of blood tests, (Scl-70 result was 25). I was told it means I don't have scleroderma. I
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