Hello everyone, I am a mother of one lovely little girl who is five and who has either linear or diffuse morphea/scleroderma according to her doctors. She too has acid reflux and gastro problems she fluctuates between constipation and diarrhea.
I am now finding from reading here and from my own experience that a doctor who specializes in this disease is needed because none of these tests have been done on my girl. They only have looked at her leg and other spots on her body (she has spot all the way up to her chest). They don't comment or hear me when I tell them of the pain in her back chest abdomen...and the gastro doctor seems to be attributing the problems to my daughter being overweight.
In my heart I feel it is all related and reading stories here my assumption is being more confirmed. I have followed the link by state and have called several different doctors from the list. I am determined to find a specialist that KNOWS something about this disease!!
My daughter is being treated with methotrexate a chemo therapy drug to suppress her immune system. Anyone ever have this treatment? Know anything about it? Have success with it? Her other symptoms are being treated separately with various medications.
I am worried sick. I am sending her to school even though she is crying everyday to stay home. I don't know if I am doing the right thing because her immune system is suppressed and because more than one post here mentions stress as a factor to flare ups.
I am desperate HELP US!!!!! Please,