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northendpoet

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About northendpoet

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    Washington
  1. Hi, Deb. My sincere condolences. I have three pups, and have lost many over the years. I think of each of them often. Even have some Santa pictures of a few of them and I love to get those out at the holidays! I know only time (and in my case, another dog...) can ease the ache when we lose a four-legged family member. Much love to you, Northend Poet
  2. Georgie oz - I have no info for you on Addison's, but my guess is that you'll find it in the MEDICAL tab. Just wanted to say hang in there and I hope you're feeling better soon. N. Poet
  3. Pamela, Just to know that specialists (more than one to choose from!) are so close, and that the Benaroya Institute is doing clinical trials that look soooo patient centered feels good. I'm changing my primary care physician as of 11/1, also. Don't ever want to be told again that gastroparesis, hypertension, fatigue, and awful joint pain are 'just what happens when you turn 50'. Can you imagine?!?!? I'll let you know if it's worth the trip to Seattle. Hope the winter hasn't hit Spokane yet. Blessings to you! Northend Poet
  4. Good morning, all! A rainy morning here, but beautiful fall colors nonetheless. Friday morning I have an appointment with a Dr. Peng at Virginia Mason Rheumatology clinic in Seattle. He specializes in treating lupus, scleroderma and vasculitis. He is associated with the Benaroya Institute which studies autoimmune diseases. The receptionist who booked my appointment said, "We see hundreds of scleroderma patients." I would love to hear from anyone who has been seen/treated at either facility. I'd love to know what you think of the care. So, I"m moving toward a diagnosis. It has been a lot of research by me and minimizing by my doctors. I need to stop this snowball of symptoms. A little scared, a lot hopeful. Sometimes vice-versa, truth be told. It's weird to go to work and act okay, and on the inside have such concerns each day. I believe they call it cognitive dissonance. I feel like I've been in a bad dream and I'm hoping that when someone can identify the real problem and work with me then I'll 'wake up' again. Thanks for any input!
  5. Kiwi, I have no words of wisdom or brilliant solutions for you. I read your post and just wanted to send some empathy and encouragement. I'll wave my wand and hope you're feeling better soon, and that it stays that way (sometimes that works as well as anything else...)
  6. Pam, I noticed a few years ago that my dry skin was becoming desert dry. And in the past year I have had to a large of patch of itch for 10 months that I finally cleared up and now it's my neck and my ears. The things that didn't work on my chest/neck were: hydrocortisone cream, calamine lotion, benadryl cream, and chamomile cream. What finally worked for me is an oil. I even tried good old fashioned oatmeal packs, but that didn't work, either. I can't imagine what you're going through. When my chest itched it was constantly somewhere between distracting and unbearable. I would try not to scratch it, then scratch until it bled. But at least I could scratch it in public! You poor thing. If your itching has to do with nerve pain, I wonder if your doctor might have a solution like the med they use for shingles pain or something? Or maybe acupuncture could help? Just thoughts... Wishing you a solution ASAP and some reliable relief.
  7. Dear Jblake, Finding the right doctor has been an ordeal for me. I'm tenacious, so I"ll get where I need to be and where I'll be respected and listened to, but the path from start to there has been frustrating. But I'm worth it. You're worth it. Don't get discouraged, don't give up, don't 'settle for' mediocre or disrespectful care. Whew! Deep breaths. For me as the subject is still a sore one. And for you cause we have to be in this for the long haul, with a sense of humor, and hope for better care. Take care of yourself.
  8. Thank you, Kathy. I'll have to a get a new mouse, but since one of dogs chewed on the old one I'm probably well overdue! My eyes thank you as well!
  9. Thank you all for sharing your hard won wisdom and support. Today was better and I feel hopeful. What a crazy roller coaster this is. I want to have more grace about me than I've had lately. Next week my sweetheart and I are going on vacation, much deserved, with a hope of feeling like a couple again. And maybe even a whole person again. I've missed feeling good, feeling carefree. Thanks again for all the love. I really appreciate it. Blessings!
  10. Today's pet peeve: unpredictability. Yesterday I could hold a cup of hot soup and eat it slowly. Today a cup of soup felt like a rock and hurt my wrist unbearably. My nature is that I function best 'if this, then that'. I like reliability and order (except in my garden). Never knowing which joint will hurt or which joint will not want to bear weight today is soooo frustrating to me. And really I know it's a small thing. It just happens to be my pet peeve.
  11. Had a meltdown. My significant other says it's overdue but how embarrassing... I see a specialist next week and believe I'll finally get a diagnosis. That should be good news... it's certainly scary ... so many emotions. I keep thinking 'How will I tell my father and my daughter?' And I keep 'hoping for the best' but am living with a body that comes up with crazy new aches, pains and dilemmas every week. Like now I constantly feel like I have something stuck in my throat... what's THAT about? So out to dinner with friends last night and someone says "How are you?" and I start to cry and cannot stop. We had to leave. The meltdown continued into the night and most of the day. I'm exhausted. I want an accurate diagnosis, I want to get better medical care, I want it to be Friday and I'm so scared. Almost like without a firm diagnosis then nothing is real even though it is. So far the last five months have been like a bad dream. It's almost so crazy I can't believe it, and then it's so real I can't deny it. Anyone else been on this roller coaster? Any tips? Thanks for listening.
  12. My all time favorite movie is The Usual Suspects. Also love Pretty Woman, The Negotiator, and The Lord of the Rings (all three in a row). And any good comedy. Loved Dodge Ball! Northend Poet
  13. In the spring and summer I garden and grow LOTS of flowers and herbs. Things that are bright and smell great and attract hummingbirds. Many times, I just sit and watch hummingbirds. Everything else goes away. They delight me! In the cooler, wetter months I have a room in my basement for art. I seldom clean it, just take the garbage out when I have to. And any project that I'm working on I can leave it there until its dry or until I feel like working on it again. Mostly, I do multimedia collage. It's A BLAST!!! I use old family photos that I've blown up or copied in black and white. I use crazy images and old maps and the maps of my city from the phone books, and the horoscope pages from the newspapers as the backgrounds. Then I paint over that and add images and/or words. Then I add my central theme, which usually includes my family and/or hummingbirds and/or my dogs. They are wild and fun and they just sort of develop themselves as I go. Sometimes one will take me a week. Sometimes months. The disasters sit in the corner and I'll paint over them someday if I feel like it. I like to use bright colors and build them up in layers. I also have a small stained glass studio down there, but I love to garden when there's good light. And you also need good light to do glass, so I don't do as much of that as I used to. Of course, I love to read. Download music from I-tunes and make new mixes for me to listen to while I do art. I go to the library and get books on CD for my commute. If all else fails, or if I'm too tired for fun or art ( which seems to be happening too often the past few months...) then a great nap and some lovely 'sleepy' music is very comforting. Whew! Got a bit carried away. But, really, try the collage thing. Look it up on line. There are as many styles as there are artists, and no 'wrong' way to do it! blessing to all! Northend Poet
  14. Dee, Good for you for getting and staying informed! I figure when it's my health, then I have to be the expert. Welcome to the site. I've gotten tons of good info here. And, of course, much welcome patience and understanding. Good luck on your journey! Northend Poet
  15. I go to my primary care physician this Monday to get a referral to a scleroderma specialist in Seattle. Dr. Jeffrey Carlin. Hope he's good and patient and a listener. So, I don't have a diagnosis of scleroderma (yet) but I do believe that the right doctor can diagnose me and get me going in a more positive direction. Seems like symptoms are mounting quickly. Now too often I feel like something is caught in my throat. What you said about your legs really hits home for me. It feels like my muscles hurt. I threw away two pair of knee socks last week thinking they were too tight around my calves. Then as I was ready to throw away the third pair it occurred to me that "it's not the socks. It's my legs. The muscles hurt in a weird way." And my knee really bothers me (only the left knee). Quite frequently it impairs my ability to go up my stairs, never down them. And knee pain, which feels like it's in the front center, and behind my knee. And one day last week my legs 'hurt' so bad I had to take my pants off and just lay in a soft blanket. WHAT"S THAT ALL ABOUT?!?!? Fatigue. Yes. Desire to do something, have fun. Just not the energy. And sleep doesn't restore me. All that being said - I had a GREAT day today. Best I've felt in quite a while. Out in the sun eating crab, playing with the dogs, even did some cooking and cleaning and I'm not wiped out :emoticons-yes: Blessings and good days to us all! Northend Poet
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