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About Cheryl

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    Australia, Budgewoi, NSW
  1. Cheryl

    Newbie with Diffuse Scleroderma

    Hi Georgie, I hope things are slowly improving. I had Scleroderma renal crisis in October 2009. It took a long time to recover, but I am slowly getting back to normal. I was luckily enough not to require dialysis, my kidney function reached 20% and is now around 50%; hang in there it will slowly improve and do as the renal doctors advise. I watched my salt intake, back to all home cooking and the meds also helped. I started Cellcept and take 3 tablets a day, can't handle high doses. The renal doctor said this would help with the kidneys and the Scleroderma. My thoughts are with you and they are always making new improvements to help us cope with this disease. Cheryl
  2. Cheryl

    Starting Chemotherapy

    Hi Vanessa, I have diffuse Scleroderma with skin involvement, I have just finished 10 Months of treatment for Inflammatory breast cancer. I had 3 months of Chemo, then a mastectomy, then 3 more months of chemo then 5 weeks of radiation. The chemo is fine with scleroderma it may even help with the skin and other problems, it is radiation that is the big problem. 2 doctors agreed on radiation and 2 disagreed on radiation, so it was left up to me, I did go ahead . It is 6 months since I finished radiation and things are pretty good, skin tightening a bit and still some cording under my arms, the cording is collagen production so we don't have much luck. I am still having a massage once a week to the chest and under the arm, the doctors would like this for 2 years if possible. Your doctors need to work in close with the cancer doctors, they changed some of my medication to cope with things and put me back on prednisone, (not happy) now down to 5 mg and hoping to came off it in the next 6 months. I hope things go well and my thoughts are with you, Cheryl Diffused Scleroderma, Kidney involvement, stomach issues, Inflammatory Breast cancer Ladies this form of breast cancer needs no lump just thickening of the skin ( so much like scleroderma)