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  1. TheTigz

    Scleroderma and Ulcers

    Thank you for your reply. Sounds like good advice. I really want to get to the bottom of it and the sooner the better. I will post again once we have seen the doctor.
  2. TheTigz

    Disabled badges and facilities

    These are my experiences of the wonder of disabled parking bays! My parents are both disabled and when I was in my early 20's I was at the supermarket with them. They had parked in the disabled bays and after putting all the shopping in the car, I (being fairly healthy at that time) returned the trolley to the supermarket. When walking back to the car, I was almost run over by a man trying to park in the disabled space next to them before anyone else got it. His bumper actually banged into my knee, and when he got out of the car, no apology, in fact he began shouting at me for crossing over the bay! Anyways, Police were called etc etc and it was dealt with. The next experience has happened to me a number of times. I was born with a deformed hip, pelvis and spine which I coped with very well until I was in my early 20's and had to start using sticks. I started having to use a wheelchair when I was 25 and was confined to it from the age of 28. Now without getting out the measuring tape and measuring my legs and finding a 2 and half inch difference in length, I look completely normal and I think this is where I have run into problems. For some reason, other disabled people, who are with no disrespect intended, in their elder years, seem to not realise that there are young disabled people out there. I have had abuse shouted at me and people accost me in my car when parking in a disabled bay about not having any right to be using them. Only when I have shown them my picture on the Blue Badge (or the old Orange ones) or my wheelchair and sticks in the car, have they begrudgingly backed off. Not once have I been given an apology. No-one can look at a person and tell their medical history, not even doctors can. And there seems to be a part of society does not realise young people can be disabled too. Sometimes I have felt that I should wear a sign or have a clipboard of my medical records attached to my head!
  3. TheTigz

    Scleroderma and Ulcers

    Hi, I have just found this forum today whilst researching Scleroderma and trying to find some answers. My mum has Scleroderma and was diagnosed roughly 15 years ago, she is now 68. She has the localised kind and has patches all over her torso up to her neck and shoulders. She hasn't had any new patches appear in the last few years, but now is having problems with her leg. It seems there is a fairly large area which is swollen and red from her ankle up to just below her knee. There is also what looks similar to a spot just off-centre which has secreted some pus. My mother has had it checked by a nurse at our doctor's surgery and she said it wasn't an ulcer but did clean it and bandage it up. The possibility that it could be another patch of Scleroderma wasn't discussed, but my dad and I are quite suspicious that this is what it is. This is the first time something like this has happened to one of the patches though, all the others just appeared and she has had no problems with swelling, pain or even discomfort from them. She also has a couple of other problems like Diabetes, Angina and Arthitis and she has become a little scared of going back to the doctor to get them to look at it again. I was wondering if there are any other sufferers on this forum with similar experiences of Scleroderma that becomes ulcerated and what there advice is. I will be making my mum go back to the doctor, don't worry about that! But I would like to be as well-informed as possible when I do. My mother has had experience of going to doctor's over different issues and they have had to look up Scleroderma to see what it is and since my mum's old doctor retired (he was very well clued-up on it), I don't think she is being taken as seriously about it. I would deeply appreciate any thoughts you can give me on my dilemma. Thank you.