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dianehd

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About dianehd

  • Rank
    Newbie

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  • Location
    South Africa
  1. Yes I do see an rheumatologist. My operations on my neck has nothing to do with the disease; I had them before I was diagnosed with the disease. I have had lots of tests and that was what I was diagnosed with, I have this pain just under my skin in the arms and they say it is nerve pain, I am so confused now, I don't know what to do. I will let you know what meds I am on. Yes I am on anti-depressants, talk to you later
  2. Thank you all for your suport, It is good to know there are others out there My hips are now going, I had a cortisone injection about two weeks ago in my right hip and it has helped a bit, I have had two operations on my feet for the pain, my right foot in ok but the surgical cut on my left foot just won,t heal, I went back to the doctor yesterday and he gave me a cortisone injection in my left hip and I have to go back next Thursday for another operation on my foot as he says the cut is so very deep now it is affecting the muscles under my foot (with terrible pain, whrn does pain stop) I would like to hear from other sufferers who have this desease to find out what their symtons are and what they do about it like will the pain in my legs ever go(weakness of the muscles) so that I can walk again will the nerve pain running under my skin especially in my arms go away and what can I do for the terrible itchness I experience on my sides and arms. What do they do for the crippling in their fingers, so on Please reply to me, maybe someone can help :emoticon-hug:
  3. dianehd

    Complaining

    What is wrong with your feet, please tell me I would like to know if it is the same, my lips are also a lot smaller and the sides are always cracking, I am going to see the doctor this afternoon about my foot not healing, I don't know what he is going to do and I am having another injection into my left hip. We are not alone
  4. dianehd

    Complaining

    What is wrong with your feet, please tell me I would like to know if it is the same, my lips are also a lot smaller and the sides are always cracking, I am going to see the doctor this afternoon about my foot not healing, I don't know what he is going to do and I am having another injection into my left hip. We are not alone
  5. I have Sclerodermia, I would like to know what other people are going through so I am not alone, it is a very depressing desease and crippling, I would like someone to HELP me PLEASE, but life goes on and at least I am still alive :VeryHappy: I have had two major neck operation, C4,5,6 and 7 are fused in my neck and I have a plate in my neck, due to this I could not work my nerosurgeon boarded me, as I was getting better at home I was diagnosed with scleroderma, it was a brutal shock to me as I have always been a very active person, after my neck ops I could not be that active so I took to walking briskly to still stay fit, not with this desease I am sometimes housebound and cannot do much of anything, due to all of this I became very depressed as I could not walk and due to the pain in my body. my family are vere surportive but they to not know what I am going through. My husband hates to see me cry but there really is nothing for him to do for me. I need someone to chat who has also been through this.
  6. dianehd

    Complaining

    I also have this desease. it is killing me, my arms and sides are so tight and hard and so very itchy, I wake up in the mornings with all sores from scratching during the night, I can barely swollow any more without choking, I have had two operations on my feet 3 months ago and the right foot won't healn now my hips are involved, I am housebound as I cannot walk due to the muscles in my legs are so tight and I have had cortizone injection into my hips for the pain, but I am alive and so very glad I can chat to other people about it :girly1-by-lisa-volz:
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