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About Snickerdoodle

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  1. I have a lot of fatigue in my neck due to three disks in terrible shape. One of the disks has burst, and the doctor said there is *debris* all around the area. Sometimes it causes me LOTS of problems, but other times mostly just fatigue. I picked up a traveling neck support pillow. And when I'm feeling the most fatigued with the pain I wear it around the house, and I take it to bed with me and wear it all night. I really get such relief from it. I'm amazed.
  2. Interesting thread. We too, hubby and I have MS & Scleroderma (CREST actually for me). And in studying his symptoms, on an MS board, I found that I experienced much the same things......although, both being autoimmune, I guess that would sound reasonable. I really don't know. I mentioned it to my nurse practitioner at my Pulmonary Hypertension Specialist, and she poo pooed it. :bye:
  3. Hi, I don't think anybody mentioned this, but my thought is that it's best to go in with an advocate. There are many in the US, and some are a free service. I had an advocate in Florida who did an amazing job for me. And though he said that they usually turn your first request down, they didn't turn mine down. He was very surprised about that. Me too. Hope it all works out for you.
  4. Hi, You subject matter caught my eye. I don't know if this is scleroderma related, but I have sensations in my legs that are like pins and needles, and also like something crawling under my skin. The sensations come on more when I am anxious, or warmish, and beginning to sweat. In the legs it begins in the feet, and comes up just above the calves.....and continues that cycle over and over again. And in the arms, it begins in the hands and comes up to the elbows, in a continuing cycle. Hope you get some answers from your doctor. So far mine just look at me when I share the inform
  5. Hi, Just one suggestion ran through my head. Hot apple cider?
  6. Thank you all for your informative and wonderful support.
  7. Exactly! Mine started with the thumb too, and went on for several years like that. Now it seems to be moving up the arm, and affecting the whole hand, wrist, and halfway up the arm. Almost feels like a tendon is involved now. I hope you find some answers Gemma. Nice to be here where others understand some of what we are going through, isn't it.
  8. I don't mean to butt in, but was wondering about some arm pain that I seem to have along with spasming of the hand with it. It's what you would see in someone with Cerebral Palsy actually. The spot in the arm that begins hurting after the spasming starts in the inside of the arm, half way up. The pain increases and increases, but sometimes grabbing my fingers or hand and straightening them out is helpful, but not always. As time progresses it gets worse. Used to only affect my fingers, but now my hand, and some of the arm as well. Is this related to Scleroderma? It's so puzzling.
  9. Thank you both for your replies. This seems to be a very organized site, and a good message board as well. I really couldn't get into the other message board, as most posters were encouraged to ONLY speak positively...and well, its hard to get information out of anybody when everybody is living in la la land. So, I didn't post more than once or twice there. Thanks for giving me info and a link to more information. Hugs
  10. I was thinking that I had joined this message board before, but it seems I haven't. I was diagnosed in 2001 with severe Secondary Pulmonary Hypertension, second to CREST. Have had some what of a reprieve for several years, when in the beginning it came on like gang busters. Now it's starting to rear its ugly head once again. Shortness of breath, inability to stand very long, breakouts on the legs with a pattern of calcinosis through the calves more so on left leg than right. I've never heard or seen anyone talk about the calcinosis on the legs, and was just reading that calcinosis on t
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