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Lulu

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About Lulu

  • Rank
    Bronze Member

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  • Location
    Canada
  1. Fatigue

    It was like some missing piece snapped into place yesterday. I had so much energy and the fog of exhaustion was gone. So weird.
  2. what kind of computer do you use?

    I have a Mac Book (laptop) and I love it! :wub:
  3. I'm happy today because....

    I'm happy because I feel better today that I have felt in months. It's like all the fatigue has disappeared overnight. :emoticons-yes: Part of me wants to know why, the other part says just enjoy the feeling!
  4. Newly Diagnosed - Possibly CREST

    Felicia I went to two rheumatologists, one who said maybe lupus and one who diagnosed me with lupus, so I went to the lupus clinic in the city that I live in and saw a immunologist. She diagnosed me with Scleroderma. The reason I went to so many doctors is that I was unhappy with the care I was receiving. I wasn't looking for a different diagnosis. When I went to the lupus clinic they started from scratch and tested me for everything. They took 15 or 16 vials of blood, a complete medical history and asked lots of questions. I'm concerned that you are just searching for someone that will tell you that is is all a bad dream. At some point you're going to have to come to terms with it and take control of your situation. Finding a doctor that you can talk to and will take the time to explain things to you is important and will help you accept that you are ill. You've taken a huge step in getting diagnosed and it's scary. Trust me I know, I wish I had lupus, because when I thought I had lupus it looked like I had a mild form of the disease. If you learn all you can and take an active role in managing your disease it will help ease your mind.
  5. Menopause @ autoimmune disease

    Thank you both for the response. I will ask my doctor to clarify what she meant.
  6. Long Term Disability

    I can't give you any advice, but I will wish you luck.
  7. Along with CREST and Sjogren's I've been told that I'm peri-menopausal. I've been told this can complicate things. Any information or experiences about this would be appreciated.
  8. Newly Diagnosed - Possibly CREST

    Felicia, it sounds like your disease is progressing. From my experience with doctors/health care you must be proactive about your care. Don't be afraid to ask questions and don't be afraid of the answers you'll get. If you know, then you can deal with the issue. If you don't then you just worry. I went to 3 specialists before I received a correct diagnosis. Good luck!
  9. Fatigue

    Sorry if this has been covered already. I'm experiencing severe fatigue and nothing seems to help. For those of you who experience this, what do to combat it?
  10. Hi

    Thanks for the warm welcome everyone! I have a lot to learn and a lot of reading to do. My learning curve over the past two weeks has been incredible. I'm sure I'll have lots of questions as I go along. Now that I'm two weeks into my diagnosis, I'm not as freaked out as I was. Along with Crest I was diagnosed with Sjogren's. I'm tired a lot of the time, so I may not get to post as much as I'd like to.
  11. Hi

    Hi all! I'm new to the board and recently diagnosed with Crest. It came as a huge shock since they initially thought it was lupus. To be honest until 2 weeks ago I had never even heard of scleroderrma.
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