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About sherrytrifle

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  1. Dear Sandy, I've been away from the site for a long while and just logged on today. Very sad to hear your news. Really wanted to write a few words. It's hard to know what to say. You have always been a positive and valuable member of this forum. I wish you timeless bliss and tranquillity. When you get there say “oy … I want a WORD.” Relieved for you that the radiotherapy wasn't as dreadful as feared. The way you have handled yourself has shown me I can learn a lot from you. Sherrytrifle
  2. Hi Chris I read your post with interest. I also have bowel issues. Are you seeing a gastroenterologist maybe your rhematologist will point you in that direction. I echo what Joelf has said. I have bacteria overflow, which increased in velocity over the months to the point where I was feebly weak emotionally and physically. At Addenbrookes I am now on a 3 week rollover of 3 antibiotics with a weeks break in between. This has really changed my life and allowed me to put on 3 stone, I look a lot healthier, and my haemoglobin blood count is stable. I now include foods I previously couldn't eat,
  3. Hi Sandy welcome back. So sorry you had to go through such a terrible ordeal in hospital, and sorry you lost your mum. Am delighted you are slowly on the mend. Your granddaughter will be a bundle of fun and will keep you occupied for sure. Glad you made it home for holiday. Keep us posted :emoticons-yes:
  4. Sandy All the best. Your'e on the road to recovery :emoticon-congratulations:
  5. Hi everyone I kept my lung function appointment. Because I didn't have a current haemoglobin result to hand TLCO 57%, however was told its probably over 60%. VA - volume (total lung surface available for gas exchange) 81%. KCO (rate of carbon monoxide uptake) 72%. I was told my reduced lung performance is probably due to restriction of lungs by muscles rather than any scarring of tissue. Seems consistent since 09. So no worse
  6. Hello Sandy I'm also very sorry to read your news, but am pleased that they can create a new oesophagus, and that the disease hasn't spread. You seem to have the right attitude. Many best wishes
  7. Hi everyone As you know I have diffuse scleroderma with polymyositis since 2005. I finally had my colonoscopy at Addenbrookes yesterday. I was told the camera (sigmascope) would be travelling all the way up to the hip. I gulped silently. My consultant told me I wouldn't need an anaesthetic as it would only take 10 minutes. I was taken to the recovery ward and was prepared for the enema. The first attempt didn't work. The doctor came and said they weren't going to go up very high; there was something in particular he needed to see so it didn't matter. Relieved. Wondered what
  8. Thanks everyone for your replies. You've been very helpful. I needn't be so scared. I'll probably take the sedated option, both procedures are being done on the same day. I've been given a liquid to induce my own enema at home, I will be right near the toilet. Will let you know when I've had it done. (not for a few weeks yet). I'm so glad this forum exists!
  9. Hi everyone It's been a long time since I was here. I'm due to have a colonoscopy and the other one where a camera is put down the oesophagus. Can any one who has had this tell me what to expect? Thanks
  10. You've all been so helpful. I take your point Jeannie about the bleeding even though it is only a little bit first thing in the morning, and will mention it. Shelley and Amanda, your suggestion really rings true for me, the reflux is really under poor control, I just remembered that years ago my local general practitioner's surgery took away the original prescribed anti reflux pill, pantoprazole that my own rheumatologist had recommended and put me on omeprazole and at a much lower dose too, this was to help manage their finances (cheaper for them). The rheumatologist was very unimpressed at t
  11. Hello again, I sometimes have blood in my reflux in the morning has anyone else noticed this. I think the consultant was only concerned if the blood was a very dark colour.
  12. Hi All, I was a stable 10 stone 6 before I was diagnosed five years ago. I was 8 stone but recently I've lost an incredible amount of weight and am now 7 stone 5. I've been prescribed special drinks. Like everyone else bones protrude which makes sitting in hard backed chairs very uncomfortable.
  13. Hi Deb1million Thanks for your reply. I'm sorry to hear you have so many conditions, It must drag you down at times, but yes gardening is a life saver and home grown veg are the best. Possibly the more ailments that brings us down the more intense and blissful those few precious moments are. We are hardy planters. None of us relish hospital appointments and doctors surgeries, as soon as possible I'm thinking, "I just want to get back to my garden, leave me alone". this summer is Open garden visiting time, if my body or the weather will let me. I wonder what other types of escapism other
  14. Dear Amanda Pleased to read your news is better than expected. Sounds like you're in good hands. They know so much about the workings of the heart these days. sherrytrifle
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