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Everything posted by NorthStarHope

  1. :happy-day: Hi, Susieq More power to you, best of luck!!! You will be my incentive. I am a good 40 pounds overweight (or more) and I must start somewhere. Thanks for the good news!!! sincerely, northstarhope*
  2. Hi Robyn, Guess you and I are kind of in the same boat. It is so hard to watch someone you love go through so much. My sister suffers from diffuse scleroderma and she has been through so much lately. I am so glad that you are here to speak with us. I have been doing all I can to bring scleroderma awareness to all. Please take care. Sincerely, northstarhope
  3. Oh my goodness susieq, Sometimes I truly do not understand people in the medical profession, that have some control over our lives. They seem to not have enough concern for our feelings. This is something they should have let you know earlier, so you had some time to make some decisions. I once went to a doctor after being in accident cause by a delivery truck who was totally at fault. The accident caused me back problems for the rest of my life. Being upset after all I went through, the doctor had nerve to actually tell me I was too fat and it would help if I lost weight. I am so sorry you had to deal with this, they should be ashamed of themselves. Wishing you the very best. Sincerely, northstarhope
  4. Just wanted to say hi to all new members, and wanted to say that I don't know what I would do with this forum, it has meant so much to me to have a place to turn to, where someone will actually listen to me. Thank you everyone!! And for all new members you came to the right place! Sincerely, northstarhope
  5. Well can't say I'm really happy to see winter coming, and for my sister sake. I know things will be much harder for her during this time. We had so much snow last winter that I think it should last a life time. But honestly what makes me happy durning the winter is seeing the first snow, and seeing all the stores decorated for the holidays, and for some who are not able to get out much seeing holiday events on tv is nice most of the time. Seeing all the holiday cards in stores already makes me happy, especially the ones that have the north star on them, this always gives me hope. Sincerely, northstarhope*
  6. Hi, Miocean Just wanted to tell you that I have a sister-in-law and her best friend, of who spend half of the year in mexico. they love it there!! I just wanted to wish you a very happy time and safe trip!! sincerely northstarhope :bye:
  7. Dear miocean, I want to thank you for all you help, my sister is home from the hospital, and im crossing my fingers for a better tomorrow. I try not to go on to much about my sisters illness because I truely can't even begin to imagine how she must feel, I only know as being her sister that I feel her pain. We are also 11 months apart in age so sometimes I feel this could have been me, many times I wished it were. I also do not truely know how my sister would feel about me writing about her, so my hands are tied at times, she does know that I visit sclero.org and I have also explained to her that through this site I have met a lot of wounderful people. Im hopeing that when she feels up to it I can show her these posts and she will someday be posting along with us. Also, to raise Scleroderma awareness I have ordered mailing address lables. there is a website that lets you create your own lables and I thought this would be a great way to raise scleroderma awareness. :)
  8. Hi, everyone Just wannted to ask if anyone knows what someone like me can to as far as getting donations toward scleroderma, this wasn't in my thoughts at first, because I just wanted to make people everywhere aware that scleroderma exsists, but now I want to help as much as I can and I dont know where to begin, I have already spread the news of scleroderma, most people have the same reaction, Whats Scleroderma? they ask, So raising the awareness has really worked so far. any suggestions would greatly help, thanks a bunch!! sincerely, northstarhope :)
  9. Hi Barefut, Wow this goes above and beyond the call of duty, this is such a great way to raise scleroderma awareness, the young ones are the future!!!A great big hug and many, many thanks!! In hope to find a cure for scleroderma! my saying is-''Together We Can Help'' Sincerely, northstarhope
  10. Dear miocean, You sure are a great inspiration to all of us, your truly a great inspiration to me, your stories sound so much like that of my sister, several times we almost lost her, and somehow she pulls through, just when we think all hope is lost she proves us wrong!(thank goodness). Never, never give up!!! You are to be greatly admired!!! Thank you for sharing your stories!! Best Wishes!! Always!! Sincerely, northstarhope
  11. NorthStarHope


    Hi Lizzy, Sometimes I dont understand people in the medicial profession, they are suppose to be caring and understanding and kind, maybe most of them are, but the nurse that my sister hand the other day at the hosipital was so very cold and unkind. I first noticed when my sister asked her a question and she did not respond, and I went to the nurses station and asked for something to ease my sisters pain, and you would have thought we were children in school, she actually yelled at me. I wasn't alone in taking notice of this, my other family members who were there the day before said the same thing. Needless to say, got another nurse. Overall most are very very nice. Take Care :bye:
  12. Hi, Barefut On my last post it seems like I hit the post button before I was done. Sorry about that, I just wanted to say Hi and thank you for telling us a bit about yourself. I look forward to makeing new friends. Take Care, Sincerely, NorthStarHope :)
  13. Hi Annie, I just wanted to let you know that you came to the right place, ever since I found the Sclero Forums, I have made many new wounderful friends, my sister suffers from diffuse scleroderma and at times you feel so alone. Finding this forum has made me have such a positive outlook! Welcome, and best wishes Sincerely, NorthStarHope :)
  14. HI, Jane Just wanted to let you know that my sister who is suffering from diffuse scleroderma also has been introduced to some probiotics and I know she has said they have helped her feel better, but as others have said I guess you would have to find out which kind would be right for you. Take Care, :bye:
  15. Dear Margaret, Thank you , all the kind words and wishes mean so much. My hopes are that everyone else is doing fine too. Many thanks to everyone!! Sincerely, NorthStarHope
  16. Hi, Everyone Wow never to be forgotton how special this will be, like being here forever all my friends and me. For my dear sister the one who has brought me here, may she always know I love her and how very much I care. Wishing everyone everywhere no more pain and sorrow, and also wishing all the best for a bright tomarrow! Many hugs all around the world for everyone!! :emoticon-hug: :emoticon-hug: (living with diffuse scleroderma)
  17. NorthStarHope


    Hi Lizzy, Just thought I would send you a note, to let you know you are not alone, since I have found new friends on these forums, I have a much more positive outlook on things. You see my sister is the one who has diffuse scleroderma and I have wanted to help her so much, but there is only so much one person can do, the doctors have to do the rest. I just wanted to let you know that you are not alone and you will always find people who care, especially here. :emoticon-hug: Sincerely, NorthStarHope
  18. Well some good news for a change, all of you were basically rightl The pain seemed to be caused by constipation and a build up of gases in stomach. Someone in family mentioned gallstones, but I don't think so. I talked to my sister today and she has a more positive note than she did yesterday! Im hoping that she will be able to eat and hold down her food now. Take Care, Everyone!! Sincerely NorthStarHope :emoticon-hug:
  19. I truly don't know what I do right now without this forum, its really nice to know there are caring people out there with such kind words. And I just wanted to somehow some way to let everyone out there know that you are my northstar! And I know if my sister could read all your kind words she would feel the same! Im hoping I shall be able to show her when she comes home from the hospital
  20. :emoticon-bang-head: Can anyone help, my sister is in hospital, not doing so well, severe stomach pain, doctors are giving pain medication, but its not helping. They cannot locate the cause of pain. They have done catscan, but nothing shows up. The nurse is mean! Not kind at all! My sis cannot hold down any food, for two days now! just wondered if anyone might know what would cause this unbearable pain. I welcome any answers. :temper-tantrum: Sincerely, northstarhope
  21. Hi, everyone This is eleven hospital visits for my sister in approximately two months, who's counting, could be tweleve, I lost track. Its just so very very sad. This time she couldn't breath again, she was hardly home from the last hospital visit, now back again. My mom and I spent hours in the Intensive Care Unit (the nurses were nice enough to let us stay) with her, this is not fun, so heart breaking. I know there are a whole lot of people out there with very serious illnesses, but I just wouldn't wish this on anyone, sometimes I cannot believe that the human body can withstand so much. For all those out there who must know the pain my sister is going through, I truly admire each one, for this is the worst of the worst kind of battle I've ever seen in my life, and that includes movies of which are not real if you know what I mean. I just hope someday things will get better. If theres a chance for some magic, or a good fairy, she sure needs it now!! thanks to all for being there!! :bye: :bye:
  22. HI, Everyone Went to visit my sister today, she said she was lonely because no one came to see her yesterday, so I stayed until she had he dialysis treatment today. By george, she seems a good bit better, she will be going home today!! HUGS :emoticon-hug: to everyone for being there! Hope all is well. Sincerely, northstarhope
  23. Hi, everyone!! Its me again, just wanted to vent a bit. my sis is still in the hospital as far as I know, its been about maybe 4 days now and last I heard from her was two days ago when she said she was very tired. i talked to my mom day before yesterday and she said she might go to the hospitial,but noone invited me to go along :temper-tantrum: to see my sis, but I havent heard from anyone today. see the problem is this is about the 9th time my sis has been in the hospital in two months, every other time she was in a hospital about 10 miles from me so I was able to spend a good bit of time with her, now they have taken her to a hospital about 30 mile away and I am finding it hard to visit her. on a positive note I am thinking maybe she is in bettter hands at this other hosipital. I am hopeing for the best!!!!
  24. Hi there eyeryone So, guess I am pretty new to these forums and posts, yet somehow I really have felt that a found a home amoung friends, sometimes its very hard to write about things without a tearful face. That's probably why I dont explain more. Well I want to thank everyone for your support and I wish the best for everyone!! It is my dear sister who has scleroderma. Oh what a battle she has on her hands. Now she is back in the hosipital with so much water around her heart, she almost had a heart attack, but she is a fighter!! Somehow my sister had too much of a blood thinner in with her dialysis treatment and they think it caused this. I just talked to her yesterday and she says she is so tired. I just dont want her to give up and it scares me to think she might. But she is very strong and I will keep my chin up! :rolleyes:
  25. I am happy today because my sister and I got a chance to go out to eat dinner, we dont go far and we can't do much, but I am very thankful for every day!! :happy-day:
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