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About martinisweetie7

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    Bronze Member

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  • Location
    New Jersey
  1. Hey All! It's been a while since I've posted. I kinda fell into a deep depression over the past few weeks. Another birthday has passed for me. I thought that would bring my spirits up, but no. I've been fighting off a lot of pain lately. I don't know if it's the horrible weather here on the east coast, but something has to turn around soon. I feel like my body is starting to not respond to my meds. Still takes an hour at least to get out of bed in the morning. I'm hoping that I can get enough energy tomorrow to tackle cleaning out my closet. I go back and see the sclero specialist in NYC i
  2. Hi Everyone! I've always wanted to learn how to knit. I absolutely adore chunky scarfs and knitted mittens. Would certainly save money by making them myself. I have a reputation in work for being the "scarf lady" since I have so many Maybe once this cold subsides here in NJ, and the swelling in my hands goes down, I can start on this one. Now if only I knew someone who could teach me... Hugs for everyone !!:emoticon-hug: ~ Jo
  3. Wow, I did not know this at all. I was just placed on Plaquenil, and all I was told was that it would not interfere with any of my other medications. The doctor never said anything about it's effectiveness being reduced by others. Thank you very much for that informative tidbit! ~ Jo
  4. Hi Jeannie! I hope you feel better soon!! Seems we all run out of spoons faster than we would like sometimes. It's only a matter of time before you have a huge handful again! The cold weather doesn't help either. We just had an ice storm in NJ today, and the cold is wreaking havoc on my body. Margaritas sound great! I guess I'll go clean my car off for some crushed ice :D Warm hugs!! :emoticon-hug: ~ Jo
  5. Hi Patty! I'm so sorry you're feeling down today :mellow: Using this board as somewhere to go to let it all out has been so incredibly helpful to me, and I think it's a good place for us to come when we feel a little down. We all know what its like to barely have the energy to blink, let alone worry about the people we love. But better out than in, I say! ;) I hope that your daughter is feeling better, and that you get great news from the doctor about your scan! I'm so jealous you're in Miami! I'm freezing my behind off here is Jersey! Feel better! ~ J
  6. Thanks for the input everyone! I have looked at all of those options, and all the input has helped me in my decision!! Warm hands, here I come!!! B) B) B) ~ J
  7. Hello Everyone! :bye: I was wondering if anyone has tried re-usable hand warmers. I have found some that require boiling once or twice a day. I have also seen some that are battery operated and re-chargeable. Has anyone tried these? I'm considering it since the disposable ones tend to get expensive. Thanks for the input! ~ J
  8. Hi Queenie, I'm so sorry you were having a bad time. I frequently go through those kind of days too. It's like you want so badly to ask for help, but those of us who are so used to being the helpers often find it difficult, especially to people who may not fully understand what we are going through. I agree that the spoon theory is a great way to help people understand the difficulties surrounding having a chronic condition. I have emailed it to many of my friends. Some get it, and some don't. It's the ones that get it are the ones to surround yourself with! You need to surround yours
  9. Hey Everyone, I guess I'm kinda venting right now. I talked to my therapist about this today, but I feel like I'll get the most help here... Has anyone had an experience where someone you trusted and thought was supporting you just completely turns on you about having a chronic condition? I had a situation where a close friend completely erupted on me last week about my newly diagnosed scleroderma. I have tried my absolute best to be discrete and unselfish about sharing how I feel. I don't like to always be talking about how much pain I'm in in fear of being called a complainer
  10. Hi JD, I'm 27, and I struggle with Raynaud's too. It gets especially worse when it's cold out. I take Nifedipine too. I've been on it for almost a year now. It works, but my hands and feet still turn blue and hurt constantly. To get through the day, hand warmers have become my best friend. I buy them in bulk at sporting good stores and keep them in my desk and my purse. Mittens help too, more so than gloves. It keeps your own body heat concentrated instead of separated with gloves. Mittens with little pouches in them to put the hand warmers in, so you get even more warmth, are also helpful
  11. Hi Queenie! I'm newly diagnosed too. It's been a year for me. I know how really frustrating it is with all the medicines the doctors throw at you. It seems my pharmacist and I are best friends now. Dealing with how to talk to friends and family seems to be the hardest; I face the same issue. On one side, I don't want to tell them everything because I don't want to upset them. On the other side, it seems that my friends and family don't fully understand what I'm going through. I found this forum at the recommendation of my therapist. It's good to know that everyone here knows
  12. I am happy today because I am feeling well enough to make it to a Broadway show tomorrow night!
  13. Thank you all! I can't even begin to describe how comforting it has been to read all of your kind words. Thank you for the spoon theory link. I emailed it to a lot of my friends who just don't understand what this is all like. Some people were asking how my therapist got me to sign up for this. I have to say, when I was diagnosed, I kinda went off the deep end, and I starting going to therapy to help me handle it all. My therapist has gone above and beyond to find resources for me outside of clinical therapy sessions to help me. She did all this research for me and handed me pack
  14. Thank you all so much for the kind words and support. I really do feel a little better already. ~ J
  15. Hi.. I've been experiencing jaw pain too. My jaw gets stiff and locks in place. Been happening for the past few months. Hurts to open too. I've been told I might have Temporomandibular Joint Syndrome, and need to see a dentist. Might be an option for you too. The cracks on the corners of your mouth is something called cheilitis. It's a dermatologic condition. I'm not sure if it's related to scleroderma, but having worked in dermatology for 10 years, I definitely know that's what it's called. You should consult with a dermatologist in your area, you may need a little stronger of a crea
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