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Indy

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About Indy

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  1. I've been on this drug before. It does increase saliva flow; however, the down side is they are expensive pills and you have to take 2 or 3 per day. I found that if I took more than 1 per day, I would get sick to my stomach. They also make you sweat profusely after taking the pill for about the first couple of hours after taking. But again, they did help increase saliva production.
  2. I'm 44. Yea, I need to stop looking at pictures on the internet of these things. Kind of like watching a scary movie and then being afraid there are monsters under your bed all night. I feel fine, and that is all that matters. I see the rheumatologist once or twice a year, so I will have to make a list or I'll forget.
  3. I had an extremely tiny bump (more like the size of a tiny tiny pimple) pop up on my hand a couple days ago...right below the knuckle. I have a couple other tiny tiny tiny bumps on my thumb joint. they don't hurt at all and really are so small that no one would even notice them. Just wanted to know if this is how calcinosis starts? Also, one other question...the veins in my hands, feet & on my shin pop out quite extensively, is this part of scleroderma too, and is it just a cosmetic thing or anything or something more. Thanks for any info.
  4. Thanks for your comforting words Miocean. I hope you are able to get out there and run some now and again. I do believe as long as I keep active for as long as I can, I will keep my joints and parts in better working order. I'm training for a half marathon in June and then I signed up to run the Marine Corp Marathon in October in Washington DC. Can't wait for the warmer weather COME ON SUMMER!!!!
  5. Thanks all for the information. The internet can make you crazy when you read all the stuff out there. I sure feel much better and am not too concerned after hearing your thoughts, which is good. Sounds like I just have common ailments at this time, and as pointed out, can all be controlled with meds and that is a good thing. Thanks again all.
  6. Thanks for the info. Jo. I do want to know though, you are a runner, when did you realize that you couldn't do the longer distances? What caused you to cut back? I am getting slower, but just feel it's because I'm getting older. I'm not going to drop dead or anything while I'm out running am I?
  7. Someone suggested I post as a new thread. See below. Can someone tell me if this is just nothing to worry about and if this is just a discomfort or is there more to it? I'm new here. I note that you referred to a list for sclero experts. Can you tell me where I can obtain or look at the list? I don't understand this disease. I have limited scleroderma and don't understand what it means. I have a great rheumatologist but she doesn't really explain anything as to what she is doing and I'm too naive or afraid to ask what any of this means. Is my level just discomfort here and there in life or is there potential for this to be life threatening? I don't understand. Can someone help me with an answer? My main reason that I went to the doctor in the first place was my persistent cold intolerance that is getting worse. Raynaud's was diagnosed. That seemed to be it, no big deal...but then out of the blue, I go to the doctor for a check up and my blood pressure is really high for no reason. I'm a runner and am in great shape. I had just run a marathon the week-end before my appointment. There should be no reason for high blood pressure. Then other things are popping up...severe constipation (with disabling cramping just at times) and heartburn, trouble with swallowing. I don't have any pains or anything. Does all of this mean this disease is progressing. I don't understand? Will this all get better and then subside and maybe flare up time and again or is it always here? Again, my main question is, is this life threatening? Or is it just an annoyance but you can live with it? Anyone who can help me understand this, it would be appreciated
  8. Getting an appointment with a sclero expert

    I'm new here. I note that you referred to a list for sclero experts. Can you tell me where I can obtain or look at the list? I don't understand this disease. I have limited scleroderma and don't understand what it means. I have a great rheumatologist but she doesn't really explain anything as to what she is doing and I'm too naive or afraid to ask what any of this means. Is my level just discomfort here and there in life or is there potential for this to be life threatening? I don't understand. Can someone help me with an answer? My main reason that I went to the doctor in the first place was my persistent cold intolerance that is getting worse. Raynaud's was diagnosed. That seemed to be it, no big deal...but then out of the blue, I go to the doctor for a check up and my blood pressure is really high for no reason. I'm a runner and am in great shape. I had just run a marathon the week-end before my appointment. There should be no reason for high blood pressure. Then other things are popping up...severe constipation (with disabling cramping just at times) and heartburn, trouble with swallowing. I don't have any pains or anything. Does all of this mean this disease is progressing. I don't understand? Will this all get better and then subside and maybe flare up time and again or is it always here? Again, my main question is, is this life threatening? Or is it just an annoyance but you can live with it? Anyone who can help me understand this, it would be appreciated.
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