Louxx

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About Louxx

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    Senior Bronze Member

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  • Location
    Scotland
  1. Hi, Thanks for your replies :) I'm going to book an appointment with my general practitioner next week and mention my concerns. Unfortunately I don't have a consultant where I live who knows about my Scleroderma. I've recently relocated to Scotland and my medical records are still in Ireland. So hopefully they'll have heard of it before. My scleroderma is not systemic, I believe it is linear but I don't have any other information than that because as an adult the only information I was given was a printed out sheet describing the different types of linear scleroderma. (Before that my parents would have been told about it, and sure they probably can't even say the word scleroderma let alone know what type it is) My scleroderma is only skin involved but does cause an issue with underlying muscle. Anyway, when I get checked out I'll pop back and let you all know how I got on. :)
  2. Hi, I've just discovered a new lesion of dry skin right next to my current skin where I have scleroderma. I haven't had new patches in over 15 years. Has anyone experienced this or do you think it could just be dry skin? I never thought I'd get more scleroderma patches again! Thanks, Lou x
  3. Hi, Thanks for the reply. That has made me feel a little better. I've become a little bit of a hypochondriac ever since I had glandular fever over a year ago and still haven't seemed to be able to combat the tiredness it brought with it. When I get the exam and results, I will make sure to let everyone know how I got on :) Louise.
  4. Hi everyone, I've had linear scleroderma on my left leg from the age of 8 (I'm now 23) I was always told I will never have the systemic version of scleroderma, but over the last month I've had stomach problems. My doctor has now decided to send me for a Scope exam to find out what's wrong. I'm just wondering if anyone has experienced stomach/digestive problems as a result of being diagnosed with linear scleroderma? Look forward to hearing some answers, Louise
  5. I looked up Telangiectasia. Is that only related to CREST scleroderma? or can somebody have it without having systemic scleroderma? I'm not very used to all the terms used on here about Scleroderma yet so I don't know whether I should be worried or if it is normal for somebody with only skin involvement to get this. Lou xx
  6. Hi, I've recently noticed a number of small red dots under the skin on my patches of skin which my linear scleroderma covers. I noticed today that more and more dots are appearing. Does anybody know what this might be? I was thinking it is something to do with blood vessels? As it is appearing around the area I got sunburnt on a few weeks ago :( Regards, Lou xx
  7. Thanks for replying :) Yeah I think I might go get it done, I used to hate the look of it, but now it has started hurting so it'd be better off fixed and in a cast/bandage for a few weeks or months. Thanks for the link, i'm going to have a read of it now! Lou xx
  8. Hey everyone :) just curious as to whether anybody here has ever had an operation on a Bunion? I'm looking into having it done but haven't heard of anyone who has had it done before. Lou xx
  9. Hi, Thanks everybody for the reply. I was a member here a few years ago, but my email address has changed since then so I just decided to set up as a new member. I am on no medication for my scleroderma (and never have been) Thankfully my sunburn in now healed, and it healed pretty quickly :) I have noticed a little change in that area of my skin though, it is a lot more flexible since I have had contact with the sun, which doesn't come often here in Ireland.Its supposed to be the middle of summer but its lashing rain outside. I still haven't decided if I will use sunbeds yet. Probably won't bother with them since I haven't really got the time anyway. Thanks for the replies, Louise :) x
  10. Hi, I'm curious to find out if anybody with Linear Scleroderma has ever used tanning beds/ sunbeds? My sister has started to use them and wants me to go with her next week, i'd love to go only a couple of times to get a little tan but I'm afraid of sunburn (since I got pretty easily burnt on my leg yesterday) does anybody know if someone with scleroderma should or should not go near a tanning bed? Thanks, Louise :)
  11. Hi, Just a quick question. I have Linear Scleroderma on my left leg, and unfortunately I wasn't very careful yesterday and my shin got badly burnt, it's showing up some tiny red dots beneath the skin surface. I'm just wondering if anybody knows of any good creams to put on it, or should I just keep using the after sun? I tried a creme but I'm not sure if it would help soothe it at all. I'm usually so careful when on holidays with my leg, but living in Ireland, i just forgot I'd burn easily on that section of leg with the sun here! :( Louise :)
  12. Hi Everyone! I haven't posted here in a good year or two I think! I have had scleroderma for roughly 12 years, I'm now 20. I have morphea/linear scleroderma on my left leg which never spread anywhere else. But 2 weeks ago I noticed a tiny (and it is very small) red piece on my right arm, which since then has turned into a piece of skin (not changing in size) which looks of similar pigment and dry/shiny skin. I'm not sure if it is anything to worry about since my doctor told me there's not much chance of it spreading away from my left leg. At first I thought I burnt myself, but now I don't think that's the problem. I was just curious, has anyone experienced what I have in the last 2 weeks? Thanks for reading, Louise x
  13. thanks everybody for replying. Sheryl, the reason I'm thinking about being a patient in an acupuncture course isn't to do with my studies haha, i don't think I'd have the patience to have a medical career I'm thinking about taking part in it because my sister's manager in work is doing this acupuncture course in her spare time and every week they need some people to practice on. If I do decide to take part in it, it will be in about 2 or 3 weeks time. so I'll make sure to let everyone know how it goes.
  14. hi, i'm just wondering has anyone has any experience with acupuncture in relation to aches and pains? I might be helping out at an acupuncture lesson - which involves being a patient, so I'm wondering should I have any concerns?
  15. Hi, My exam went ok, i ended up doing an orange and dark chocolate mousse(although it didn't really taste like orange) my teacher thought it was a bit flavourless but he liked the way I decorated the plate. I burnt my finger on caramel, it stuck to my finger so it was sore for a few days. so I got annoyed with that sauce I was trying to make, one of my friends said I could use hers. :) Then he asked us to improve on it for the exam the next week, so I done the same dish again but I put in some grand marnier aswell just to flavour it a bit more. He said he prefered the first one I done, which is true because my second week I was just so tired I wasn't even bothered. And my decoration that week was just terrible, everythng just messed up on me! He still jumped me up 6 marks though. So I was happy. I have a photo of my first weeks one, forgot my camera on the 2nd week, so I'll stick up a photo sometime soon. Happy holiday!!