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InGoodHands

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About InGoodHands

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  1. Hi Summer. I saw the suggestion for Gatorade. It's a good one! I hope that all goes well for you and that you have a speady recovery with NO complications! Patty
  2. I want to thank all of you ladies for your input. It is remarkable that you have taken the time to answer my questions, and you HAVE. First hand knowledge is always better than theories. I have not yet decided to proceed. I am still weighing the issues. I am so close to menopause (likely) that it seems if I can just postpone it for a year, I might be over the hump. I very much appreciate your help in ferreting out whether there was a connection with my hormones and the sclero. Another option is taking hormones to stop the bleeding. My rheumatologist strongly recommended against them, but from what you are saying, that is an old school theory. Hmm... Perhaps I should change rheumatologists? It is difficult to decipher all the clues. I am very thankful for all of your help.
  3. Hi, Thanks for your reply. I've had problems with heavy bleeding, I'm 53. I'm sure menopause is around the corner, but the anemia is significant and I ended with 2 units of blood last month because of a low hematocrit. There is no cancer. My rheumatologist did suggest that having no female hormones may benefit me, and of course as there is this anemia problem. But I'm not all that convinced that having a major surgery is what I want to do. I thought if someone who had already had a hysterectomy could then tell me they saw an improvement in their connective tissue disease, it would be worth proceeding. I live in Oregon. No specialist close. Closest is Stanford. I wonder if I should go somewhere else. Patty
  4. I've been advised by my rheumatologist that a total hysterectomy may help with CREST. I'm wondering if anyone has experience with this and can give me some first-hand advice. Patty
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