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About Marnie

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  1. Marnie

    New & having a bad day

    Thank you so much for your reply; that meant a lot. I've been so scared of this disease that I've not been able to open up to friends and family. I'm 48 years old, married (just celebrated our 25 wedding anniversary) my husband and I have 2 children and 4 grandchildren, would say I don't feel old enough but then I'd be lying I have been diagnosed with limited sceroderma but my lungs are suffering now and I'm just about to have a heart scan as getting very bad heart palpitations. Keeping my fingers crossed; this is the first time I've spoken about this let alone write it down (I feel like I'm in therapy )
  2. Marnie

    New & having a bad day

    Hi everyone, I can't believe it's taken me all this time to read this great forum, trying to ignore the fact that I have this horrid disease, I didn't want to read it for fear of nasty stories but you all sound so up beat, I hope we can have some good chats x