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Momx3

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  1. My husband is out of the hospital and doing better. He needs to try to put on some weight. He's taking a variety of drugs to increase gut motility. The diagnosis is scleroderma colonic pseudo bowel obstruction, or something like that. I might have words in wrong order. He's tired but happy to be home. Now we have to work on finding a doctor in our area who knows more about scleroderma and is willing to consult with specialists when they don't know what to do. Thanks for your kind thoughts.
  2. Thank you all for your kind thoughts. As of tonight they are treating him for a pseudo bowel obstruction, basically severe constipation. The gastroenterologist had discounted this idea when I brought it up. After watching a presentation about this, it made sense to me. But due to the fact that his stomach is not distended the gastroenterologist felt it couldn't be an obstruction, even though patient couldn't pass gas or have a bowel movement. But given that they had nothing else to go on after 10 days, .they decided to clean him out and see if it works. I'll keep you posted as to his progress. It will be sad if all of this could have been corrected with a .99 enema rather than a $100,000 hospital stay. It's a difficult part of living in a rural area without access to specialists. But the story isn't over yet so perhaps I'm jumping ahead of myself. Thanks to all for being there. I'll know a lot more tomorrow and will fill you in. Perhaps someone else will benefit from our experience.
  3. Husband has scleroderma and rheumatoid arthritis that has been well managed with usual meds. No history of heart, lung or kidney involvement. Mostly skin, joint and esophageal problems. 10 days ago developed sudden excruciating low back pain and severe nausea. In hospital on pain and anti-nausea meds, but nobody can figure out the cause. He is in a teaching hospital where his Rheumatologist practices but she hasn't seen him yet. He had endoscopy today which showed no changes that would cause this problem. MRI of back showed nothing. I'm thinking perhaps a bowel obstruction or pseudo obstruction but doctors say no because his stomach isn't distended. He hasn't had a bowel movement in 4-5 days but they blame that on opiods. Doctors are totally stumped but he has yet to see a doctor who knows much about scleroderma. I'm not sure if there is such a doctor at this hospital. In the past he has been seen at Boston scleroderma clinic but in no shape to travel there now. Does this sound like a scleroderma related illness? Any thoughts? Anybody out there experience similar symptoms? He was very active and doing great until this. Thanks for any suggestions you might have.
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