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About betty32506

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    Silver Member

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  • Location
    Pensacola, FL Extream NW FL_
  1. That is a problem for me also. I use plain petroleum jelly and apply it with a q-tip. Betty
  2. I developed bad sores and sensitivty in my mouth. The dentist should have known but didn't. The Rheumatologist diagnosed Sjogrens and prescribed Evoxac. It took some time but cleared up. I changed dentists and he gave me samples of Biotene products. I keep a very small bottle of the mouth wash with me and a one drop touch does a lot but is not enough to require spitting. A small amount on your tooth brush with regular tooth paste helps. I don't like their tooth paste. Betty
  3. On a positive note... I went to a new doctor and when Raynaud's was mentioned it was easy to show her. I took off one shoe and sock and said it won't take long. In less than a minute walla...there it was. We could watch the whole process. My feet are most problematic. I always wear socks, not always wear shoes (at home of course), but got to have those socks. Betty
  4. I too continue to have positive SCL 70s. The most recent was 248 in a range of <100. I just saw my rheumatologist and she felt my skin and said "no". I've been trying to understand symptoms that do not include skin. I understand and share your concerns. Betty
  5. Thanks for your information. I reread those references hoping to find something new. Betty
  6. <My rheumatologist suggested that I might be able to take half the medication I normally take> Buttons, Sorry to jump in like this but I would like to know what meds you take for it. Thanks. Betty
  7. I get copies of my labs and test but getting doctors notes is a different problem. I have had lots of errors in my records. There have been only minor medical problems because of errors. There was a legal one that I was afraid would cause a problem. That was after an automobile crash the doctor said "the seat belt gave way". We had to sue to get the claim paid. Lawsuits and insurance scams as they are I was glad it wasn't a problem. They could have blamed the auto manufacturer. Betty
  8. I am glad to see things are going that well. The last several years I have been tested for Scl-70. Sometimes they are positive and sometimes negative. I don't think I have symptoms that we can attribute to scleroderma. I don't know which tests are related. I have tested positive for lupus and the rheumatologist told me I don't have lupus. She wrote to my general practitioner that I do. Go figure. I think she doesn't know what I have. Thankfully none of my problems are extreme. I have been diagnosed with Raynaud's, Sjogren's and tested positive for a few other things. The good news is no RA.
  9. OOOPS Bad typo: Single lenses as you mention is probably the same as the reading part of the glasses. That should have been same as the top (distance) part. Betty
  10. I'm sorry for your loss. These times can be trying. I use the something in the hand trick. I always hold it in my right hand and extend my left. People tend to grasp the left handed shake differently. Some times I would hold the item with both hands. This also seems to cut down on the vigor of a hug. I have some problems with my hands and I played the organ. If someone grabs my hand it greatly effects my playing. Since I can no longer play I use variations of these techniques. Betty
  11. Trifocals help me. Single lenses as you mention is probably the same as the reading part of the glasses. You have to learn to only look through the bottom of the glasses for closeup. I never had a problem getting used to multi focal lenses so this was not a problem for me. Betty
  12. My mouth became very sensitive to everything. Things even slightly spicy burned. I could not use any regular toothpaste. I tried many different things to help clean my mouth. Finally found a kids toothpaste that was bubble gum flavor. Not good. I used a very soft toothbrush designed for infants. This went on for weeks. Then I developed little sores in my mouth. The rheumatologist diagnosed it as Sjogrens. She prescribed Evoxac. Gradually it cleared up. It is good now and I am back to regular products but use the Evoxac regularly. Also the dentist gave me samples of Biotene. There is mo
  13. I have been on Evoxac for 6 months and it is a big help. I had sores in my mouth and they have cleared up. I have acid reflux and take the "purple pill". I have long had problems along that line. Sometimes it is better or worse. I also eat Tums and Pepto Bismal. I have not connected that to the Evoxac. But of course there could be a connection. Betty
  14. While I was undiagnosed with Raynauds my thumb would slip out of joint. It just about paralyze me for a few seconds. Since I played organ or keyboard at church that created problems. A hand surgeon made me a joint out of a tendon from the arm. He said an artificial joint would not work as the thumb is used so much it would wear out soon.That was a real surprise. Recovery was slow and very painful. I also had foot surgery for tarsal tunnel in a foot. My daughter, 40 years of being diabetic has long had problems with her hands. They were claw like so she could not straighten both her h
  15. Janey, Thanks. The lady I was asking for has neuropathy so bad she is using a walker. Since my neuropathy is not related to my diabetes this came up. Two of her kids also have it. Your reference is interesting. Betty V.
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