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JBG

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About JBG

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  1. Hi, I've been taking 25mg/once a week of MTX for 6 years. I feel very fatigued, but my joints don't hurt as much. My Rheumatologist says it takes at least 3 months to kick in. Regards, JBG
  2. Hi there! I also had cervical spine surgery for stenosis (fusion and fixation with metal rods and screws C4-C7), but the posterior way. It was on Oct. 24, 2011. What pain!! The neurosurgeon warned me that going through the posterior way would be more painful, he didn't want to do mine anterior because of my swallowing problems from the SD. I'm still weaning out of the brace and just started PT yesterday. It certainly is a long road of recovery. All the best to you. Regards, JBG
  3. Thanks so much for the replies. I saw my surgeon today. He was so pleased from what he saw in the x-ray. I still have to wear a cervical neck brace for 2 more months. That's when the surgeon wants to see me again. He also said that I'll start PT after I get out of the brace. The doctor was so upbeat and really made my husband and I feel good. I saw in the x-ray the screws and rods the surgeon used in my neck to fixate it. I do not need to carry a card because the hardware is titanium.
  4. I also have CREST and experienced a 90 percent coronary blockage in 2003. I had a stent inserted. Since then I've been fine with my heart symptoms. The doctors said the blockage was not from having CREST.
  5. Hi all, I finally had the cervical spine surgery I was scheduled for. All went successful. I feel like I was hit by a truck. I had the surgery on Oct. 24th, stayed in the the hospital for 4 days then went to rehabilitation facility for 2 weeks. I now have a neck brace on. I had 3 levels of my spine fused. While in the hospital and rehabilitation facility, my blood pressure was low. That's how it is all the time. I am on 2 blood pressure meds for severe Raynauds. Because of the low BP, I was taken off the meds. I tried convincing the nurses that I needed the meds. Finally after having very bad attacks, I was put back on the meds. At least I know they are working. I guess that was a good test. I see the surgeon in 2 weeks. I'll keep you posted.
  6. Congratulations to all!!! Thanks for all your hard work and support.
  7. Thanks for all your good wishes. I truly appreciate it.
  8. Hi, I was the one who started the cervical stenosis thread. I don't really have any pain from the condition, but the numbness and tingling sensations are quite bad. I too had an MRI and it showed that the stenosis is really severe. I am scheduled for surgery on October24th. I was told the stenosis is from wear-and-tear (arthritis). I'll be 50 tomorrow. It could be from the Scleroderma. I have CREST. Hope the thread helps you. Please PM me with any questions. Regards, JBG
  9. Buttons - My neurosurgeon told me the same thing. He said in my case I have no choice because of my swallowing problems. Jeannie - Thanks so much!! >> Has the doctor given you any idea how long you will need to be in the hospital Up to 4 days. >> what your recuperation period is likely to be? Bad pain for 2 weeks and 6 weeks to feel decent.
  10. An update from me... I went to the neurosurgeon yesterday. He said that I definitely need to have surgery. The cervical stenosis is very bad. Due to the swallowing problems that I have, I'm not a candidate for them to get to the spine from the front. Therefore, I need to have open back surgery. The surgeon said this type of surgery is more painful than if they went in through the front. The surgery is scheduled for October 24th. Thanks for all the replies.
  11. Jeannie - Please let us know how you make out with your tests. I see the neurosurgeon on Thursday. All the best to you.
  12. Thanks so much for your replies. I really do appreciate it. Buttons - I was told the same thing as you. If I don't have the surgery, I can become paralyzed from the neck down. I also have the same symptoms, eg. numbness, tingling, etc. What a year it has been for me. I also contracted Valley Fever. What's next?
  13. I have CREST, Lupus and asthma. This past week I was diagnosed with Cervical Stenosis. The neurologist said that it can be from an old injury, I'll be 50 in a couple of weeks, as well as from the scleroderma and Lupus. He is sending me to a neurosurgeon. I have an appointment with one this coming week. The neurologist said the stenosis is severe. I had MRIs taken of my spine. He and the radiologist both said it's not good. Any advice is welcome. Thanks.
  14. Thanks so much, Susie and Chopper for your replies.
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