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nickyhj

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About nickyhj

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  1. Morphea Post Burn out

    Hello, I'm wondering if anyone can help me. I have localized morphea which has finally burnt out and after 3 year of taking methotrexate I came off the medication in February 2016. However for the past week I have found that if I apply any pressure to the areas where I have scarring (mainly my arms) it gets very hot, itchy and inflamed. This does then calm after a little while. I have also had a cold this week so wondered if it might be linked to my body trying to fight the cold and therefore my immune system is overreacting a bit? I just wondered if anyone else had experienced anything similar and if so what action did they take? I currently have an open appointment avaliable with my consultant so can go back at anytime until February 2017. Thank you for your help Nicky
  2. Weight Gain

    Hello, Thank you for the advice. I think I'll mention it to my doctor at my next appointment. I know there are probably other factors that are contributing to it e.g. I recently moved in with my boyfriend and started a new job. I know I've also been quite stressed which probably doesn't help. I have been having other symptoms with my morphea, I get a lot of headaches, stomach acid, Raynaud's and joint pain (particularly in my hands) which is not fun. I have another appointment with the specialists at the Royal Free in London in October so I think I will mentions these when I go there. They were very helpful and supportive when I went last year so I'm hoping it will be just as good. I will also focus on my diet and see what improvements I can make in the mean time. Thank you all for replying :).
  3. Weight Gain

    Hello, I was diagnosed with Morphea in January 2012 and have been on Methotrexate since September 2012, I am also taking folic acid. I just wondered if anyone else has experienced weight gain whilst being on Methotrexate? Since I started it I have put on around 8 pounds and no matter what I do I can't seem to lose it. Thanks, Nicky :)
  4. New with Morphea Scleroderma

    Hi everyone, Thank you all so much for your help. The links and information you have all provided have been very helpful. My next appointment with my doctor is not until the 21st of August so I have some time to consider my options and I will definitely use the information you have provided to help me. I will keep you updated with my decision and progress in the future. Amanda Thorpe unfortunately I cannot attend the meeting on the 26th, I am currently studying for my accountancy finals so my weekends are spent studying, but I will keep my eyes open for future events and try and attend some. Thank you all again. I look forward to speaking to you all more in the future. :D Nicky
  5. Hello, I was diagnosed with Morphea Scleroderma about a year ago. I am 22 and it is mainly on my arms and shoulders. I have been seeing a dermatologist as my local hospital and she has recently suggested I try Methotrexate. I was just wondering if anyone else had tried this and kind of results it gave and if they experienced any side effects? I was also offered the option of a PUVA treatment so I also wondered if anyone had used this and what results they had experienced? I'm currently trying to decide which is the best option. I also wondered if I should attempt to see a specialist who had more experience with my condition and if anyone could recommend anybody? Thank you for your help. Nicky
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