This is my very first post here - I was browsing around and this thread caught my attention.
I'm 44 and was diagnosed with Scleroderma in 2000. I'm very unsteady on my feet - I need help when I go out most of the time, otherwise I've been using a 4 pronged cane. I'm afraid of falling and getting hurt, and as a result I'm pretty much housebound and agoraphobic. My fiance does the grocery shopping , and he calls me every night before he leaves work to see if I need anything. I do most of my other shopping online - gifts, clothing etc.
I'm in the process of finding a new neurologist because I don't like the one I've been seeing. I will bring the information I found here and raise the possibility of this with my new neurologist.
It's nice to find this site, and I look forward to sharing and receiving info with others with similar issues.