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About lotokids9

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    Bronze Member

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  • Location
    Riverton, Utah
  1. Wow, that is quite the experience. I am so glad to hear you are doing better.
  2. Eh, I am not worried there is something really wrong, I agree if it is that big of deal that they will not wait to let me know a treatment plan. I just still am not a good waiter. :-)
  3. So yesterday I had a lung function test done. After we had done the albuterol inhaler part and went back to testing the technician said that the results after would be considered a significant change. My rheumatologist is out of town for a week so I have no idea really what it means and what they are going to do about it. Any info all yall have on this is more than welcome. Thanks
  4. At least a refund when you go to the next doctor and what they seem to tell you is completely oposite. Humm, how does that happen. One doctor, yes you have a mildly (he likes that term, as if just because it is mildly high it is not causing pain) RF, Sed rate and C-reactive protine levels. Keep doing what you begged for and I will see you in a month. VRS You HAVE RA, Sclero I want to run a few more tests on because your not straight forward case, you had a neg. test four months ago but are showing postive now, lets run another and look at things but since you are having chest pain a
  5. Judy, Sorry to hear that you can't eat anything unless it taste like paper, that would certainly be the pits.
  6. I just had more blood work done and the doctor I am now going to is part of an online thing where I can see my results as soon as she can however this time the labs do not have the normal vaules range listed so I am still waiting because I can't seem to find anything that can tell me what I am looking at so I thought I would post them here and see if any of you can help me.... Lupus Anticoagulant Panel R DRVVT Confirmatory Test R NOT APPL aPTT 37 Hexagonal Phospholipid Neut NOT APPL DRVV Corrected NOT APPL TT NOT APPL Reptilase Time (Patient) NOT APPL PTT-Heparin N
  7. My doctor did talk to me about the injectables because she is worried with the constant diarrhea I have been having that I will not absorb the medication so she said we may switch to them for that reason also.
  8. So Friday I went to see the rheumatologist I don't like. The one that told me it was just a virus and to take the celebrex and go to my primary care doctor, he didn't need to see me anymore because I dont' have anything rheumatic going on. I had made an appointment with a new rheumatologist but we were still two months away from that appointment so I decided since I am having more symptoms and additional blood work that I would go see what he had to say again. So my latest symptoms are shortness of breath, pain in chest and back, diarrhea, continued joint pain even though on the Celebrex 2รข
  9. Thank you! I am going to call the rheumatologist office tomorrow and tell them I want to be prepared, these are the symptoms I am having what test can I have my primary order so I am not just sitting around waiting. We had our first 5 in 5 years, actually having 7 pregnancies in 5 years ON birthcontrol. I go into labor at 24 weeks, we had 2 preemies and a failure to thrive so after that we decided to call it quits on our own and did foster care for about 4 years before adopting a sibling group. We got our girls when they were 2, 1 and 6 months and our son was born during the process.
  10. Ugg sorry to hear about the congestive heart failure. My primary doctor is being reluctant to order a puminary function test. I about lost it with the nurse on the phone today. I just said after researching and posting on boards of people with Sclero I feel I need to get a PFT done now so I am prepared going into the rheumatologist. I don't want to wait until the end of November for this appointment only to have to wait around longer for more test before getting some answers. She hemed and hawed and then said she would talk to the doctor again. We will see. I expect him to call me tonig
  11. My primary was going to call today, he was not happy that I hadn't been seen yet. The problems is all of the Rheumatolgist here are out that far, I did try calling around plus they won't talk to you unless your doctor's office calls in. Very frustrating. I plan to call every day and say, I this is Laura I am just seeing if you have any cancelations today. I figure then when they finally do get one they will think of me first.
  12. I haven't had any problems swolling yet but this trouble breathing seemed to come on all the sudden. It use to just be at night and now it is all the time. The acid reflux is all the time no matter what I eat etc. Able to swollow though fine.
  13. I was on a 60mg taper and then on a maintance dose of 10mg. I felt that I was doing better on the Celebrex. He does have me on both for a few days just because he doesn't want to take away the pred without any celebrex built up in my systom so I know your not suppose to be on both at the same time but I think it is worth it because the thought of going off pred before starting the celebrex just insn't working for me.
  14. Hi, My name is Laura. I have many many questions. My doctor has spoken with my new rheumatologist (which I haven't seen yet) and told her what my bloodwork said... LATEST BLOODWORK - Showing Scleroderma ANA Postive SCL-70 AB positive (Cascade interspretive comment: SCL-70 antibody is strongly associated with scleroderma.) Rheumatoid factor 20 H ESR 32 H My sed rate and RF have been continually high for months now. I have been on Celebrex 2x's a day 3/28/2008 to 7/18/2008 then I stopped it because my first rheumatologist said that this was just a virus. Well
  15. Hey everyone. I am a 34 year old woman, wife and mother to 9 children. In February I started having popping in my joints that then went to pain in my elbows and every other joint in my body. I got so bad that I was bed ridden. They put me on 200mg Celebrex one time a day and that did nothing. They then put me on a two week prednisone tapper and that helped a lot. After that I was not a 100% again but I could function decently. They put me on 200mg Celebrex 2x's a day and we waited for the blood work. These were my results... My sed rate was 25 HIGH Rheumatoid Factor 19.1 HIGH
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