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About hayleylouiselewis

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Rank
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Location
Bristol, England
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Thanks Jo Really helps a lot, sorry that you are still ongoing steroids treatment but you said you feel better for it...so that is good :) . I am having the injections in my arms...over 4 days... It's not to atop pain for me though it is to try and clear the white cells and inflammation. I do not want to come across vain in anyway but I am worried about weight gain....I go to the gym 4 times a week. I wonder if there is anything to stop the steroids from making me big....hahaha I might only need them once. Let's hope so ay :)
- 8 replies
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- scleroderma
- linear scleroderma
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First of all sorry if this all makes no sense, I am not good with wording haha My name is Hayley I am aged 23 and live in Bristol, UK. I have had Morphea since I was 7 years old. My mum discovered it and we started going to the hospital on a regular basis. So I have a very deep indentation on the right side of my head it is about inches (hair does cover it but have to wear hair certain way to hide the dip) I have no fat tissue or muscle in my right temple so it dips in (also have to have a heavy fringe to cover) Large area of back and collar area is also discoloured and loss of muscle
- 2 replies
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- scleroderma
- eye
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Hello again. Thanks for replying....really nice to get support through this site and support others. I knew that no one would be able to relate to my problem as it is really rare but it is caused by the scleroderma so I will keep posting. I have tried to upload some pics of before and after my surgery but will have to wait till I go onto my PC. Would really like to find someone who has experienced anything similar in anyway....as little anxious about the steroids and side effects. I will try not to scare myself just hope all steroids fix my eye then I can continue my surgery on the
- 8 replies
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- scleroderma
- linear scleroderma
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(and 1 more)
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First of all sorry if this all makes no sense, I am not good with wording haha My name is Hayley I am aged 23 and live in Bristol, UK. I have had Morphea since I was 7 years old. My mum discovered it and we started going to the hospital on a regular basis. So I have a very deep indentation on the right side of my head it is about inches (hair does cover it but have to wear hair certain way to hide the dip) I have no fat tissue or muscle in my right temple so it dips in (also have to have a heavy fringe to cover) Large area of back and collar area is also discoloured and loss of muscle and fa
- 8 replies
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- scleroderma
- linear scleroderma
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(and 1 more)
Tagged with:
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Because I have lost movement in one side of my face I have had surgery to try and make it look even. Also fat from belly and legs in the area where I am missing fat and muscle definition.