Jump to content
SCLERO.ORG
Sclero Forums

hayleylouiselewis

Members
  • Content Count

    4
  • Joined

  • Last visited

Everything posted by hayleylouiselewis

  1. Thanks Jo Really helps a lot, sorry that you are still ongoing steroids treatment but you said you feel better for it...so that is good :) . I am having the injections in my arms...over 4 days... It's not to atop pain for me though it is to try and clear the white cells and inflammation. I do not want to come across vain in anyway but I am worried about weight gain....I go to the gym 4 times a week. I wonder if there is anything to stop the steroids from making me big....hahaha I might only need them once. Let's hope so ay :)
  2. First of all sorry if this all makes no sense, I am not good with wording haha My name is Hayley I am aged 23 and live in Bristol, UK. I have had Morphea since I was 7 years old. My mum discovered it and we started going to the hospital on a regular basis. So I have a very deep indentation on the right side of my head it is about inches (hair does cover it but have to wear hair certain way to hide the dip) I have no fat tissue or muscle in my right temple so it dips in (also have to have a heavy fringe to cover) Large area of back and collar area is also discoloured and loss of muscle
  3. Hello again. Thanks for replying....really nice to get support through this site and support others. I knew that no one would be able to relate to my problem as it is really rare but it is caused by the scleroderma so I will keep posting. I have tried to upload some pics of before and after my surgery but will have to wait till I go onto my PC. Would really like to find someone who has experienced anything similar in anyway....as little anxious about the steroids and side effects. I will try not to scare myself just hope all steroids fix my eye then I can continue my surgery on the
  4. First of all sorry if this all makes no sense, I am not good with wording haha My name is Hayley I am aged 23 and live in Bristol, UK. I have had Morphea since I was 7 years old. My mum discovered it and we started going to the hospital on a regular basis. So I have a very deep indentation on the right side of my head it is about inches (hair does cover it but have to wear hair certain way to hide the dip) I have no fat tissue or muscle in my right temple so it dips in (also have to have a heavy fringe to cover) Large area of back and collar area is also discoloured and loss of muscle and fa
  5. hayleylouiselewis

    surgery

    Because I have lost movement in one side of my face I have had surgery to try and make it look even. Also fat from belly and legs in the area where I am missing fat and muscle definition.
×
×
  • Create New...