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mydotcom63

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About mydotcom63

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  1. Afternoon all I was told that I had Limited Scleroderma a little over 2 years ago - I didn't have any symptoms but it was picked up in some routine blood tests organised by my gynaecologist when checking for issues with me taking a higher dose pill. Had never heard of this before and he gave me the name of a specialist to see at Greenslopes Private who was an immunologist, but does that also mean he is a "Scleroderma Specialist" that I have seen referred to in other posts? I went to see him, he kind of examined me - but not really sure what for. Can't say he was particularly forthcoming with information about what I could expect going forward. He checked my fingernails and a few other things that I don't recall. He arranged for me to have a Lung Function test and an ECG. I didn't hear from him for about 6 months or so when I finally got a letter saying basically nothing out of order I didn't chase him up as I really didn't know what was supposed to be wrong with me - if anything and I didn't feel "sick". All I know was that Limited was a much better diagnosis than Diffuse. I haven't done anything about this since, but I am planning on doing some extended travel next year and don't want to go overseas and find that something unexpected crops up and I have no idea what it is or what to do about it or who to see. I really don't know what to even look for in regards to any progression or changes to the symptoms I may be experiencing - as far as I can say today, I don't have anything that shows as a symptom of anything other than sore knees from a particlarly hard PT session yesterday!! Do I just go back to see him or is there someone / other type of specialist, that I should go to see? Should I see someone more regularly? I have no idea and would appreciate any information available of sources of such in Brisbane?
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