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scampie5

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About scampie5

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  1. Lung Function Test

    Hi every one this is Lyndylou 5 who has had to change name again AKA Lynn Jarvis . Had Lung function yesterday and saw lung specialist today. Good news, lungs have improved a bit and are still stable from last test 4 months ago. I was so pleased, after being told I only had about 2 years left to live, and 1 and 1/2 years later I'm stable. I think you can all imagine the look of complete joy on my face! It was magic. hugs Lynn
  2. Tendonitis

    Hi, before I was diagnosed with scleroderma I had tendonitis and had a small operation on my thumb. I remember the doctor doing it called over another person saying he had never seen so much I can only describe it as muck before on the tendon and had to scrape it all off. It was very painful before I had it done but so much better these days, however I think I have it in another finger, very painful. Maybe when I had the operation it was part of the scleroderma? So many things in my past that I can now relate to maybe having symptoms of scleroderma that get mistaken for other things, but I think that is the same with most illnesses. Hopefully in the furture certain symptoms will be recognised as scleroderma or at least make a doctor check just in case. Lynn
  3. Toe Ulcer

    Saw my specalist yesterday and asked him about my toe he thought it was infected and lanced it however had to go to doctors today as it didn't look good and doctor said it is a bunion that has got infected but I never had a bunion there? Anyway got antibiotic so hope that works. Lynn
  4. Toe Ulcer

    Saw Specalist today he lanced the toe but said it may turn into a ulcer and to watch the redness around the middle that it doesn't get bigger and looking at it tonight I think it has. I think when he lanced it some pus came out so will just have see how it goes will keep you informed hoping it won't turn into a ulcer. love Lynn xxxthank you for all your replies.
  5. Toe Ulcer

    Hi thanks for your replies. I cannot get a photo of it; however I am at the specalist tomorrow and will ask him. It's a red circle and a cream colour on the inside of the circle. I will keep you informed. Lynn
  6. Toe Ulcer

    Hi, does any one have a picture of a toe ulcer? I think I may have one on the top of my toe. It's a round red ring on the outside and a cream colour inside the ring. Well I think it's creamish, can't get that close to see it. Many thanks, Lynn
  7. My family did a surprise party for me on Saturday. I never knew a thing. Everything was done in the scleroderma colours. There were raffles and so much more all dressed in fancy dress. They raised £240 pounds for Scleroderma. I am so proud of them keeping this as a surprise. On the Sunday that was my birthday, they took me out for a meal. I had to wait for the cab....... it was a limo!! I have never been so spoiled and surprised. The icing on the day was the money they raised. I am blessed with a good caring family. Lynn xx
  8. Hi For years my family called me a hypchondriac, I seemed to always have some thing wrong with me, lol. Always at the doctors but looking back after being diagnosed with sclero I have found that many of us have had this problem. At the time it was so annoying as my family often put me down over this and I used to get so upset about it as it was so real to me. Today my family's children have allergies etc. and often phone me about this and I am so glad that I can help them. I think at last they understand me, my past and my problems. Lynn
  9. Hi I remember Birdman. Thinking of him and his family xxx
  10. Splitting up

    Hi everyone, I am sad to say that my husband and I are splitting up. I am coming to terms with it, as we keep arguing and I cannot deal with this and my illness so need closure. I am trying to move near to my sister as they all live in the same area and will need their support even though ex hubby will still take me to appointments etc. I am sad as I will not be able to take my dog with me as I will be renting but maybe the cat. I think I might get a parrot so if you do not see me on chat for a while you will understand why. Love and hugs to all of you, Lynn.
  11. my Poem

    I look in the mirror And who do I see I see some one but she isn't me my lovely eyes that glistened and glowed they have been replaced and are round and small I look through them but things have changed my skin is tight and wrinkle free I Know what you are saying oh lucky me I will have to disagree my lips are thin and my mouth is small that's not my face not at all I used to have a smiley face I do not remember when it was replaced I wish they would bring my old one back the one I had before SCLERODERMA attacked and left me looking so unreal oh well there's nothing I can do my eyes are playing tricks again I cannot see any flesh on my feet and hands my fingers are tight my nails have ridges and dents I am beginning to think they have been replaced along with my face My bones well they are not the same in fact all they do is give me pain my body aches and I'm always tired and my fingers and toes they go blue oh well there's nothing I can do My lungs are in such a state they just do not want to co operate with things I'd like to do they're always wheezy and tight NO I won't give up the FIGHT so when I look in the mirror who do I see I see some one she is not me I am glad my brain is still intact and tells me the person I see is me but looking different than I used to be and the person inside me well she is the same old me
  12. my poem

    I look in the mirror And who do I see I see some one but she isn't me my lovely eyes that glistened and glowed they have been replaced and are round and small I look through them but things have changed my skin is tight and wrinkle free I know what you are saying oh lucky me i will have to disagree my lips are thin and my mouth is small that's not my face not at all I used to have a smiley face I do not remember when it was replaced I wish they would bring my old one back the one I had before SCLERODERMA attacked and left me looking so unreal oh well there's nothing I can do my eyes are playing tricks again I can not see any flesh on my feet and hands my fingers are tight my nails have ridges and dents I am beginning to think they have been replaced along with my face My bones well they are not the same in fact all they do is give me pain my body aches and I'm always tired and my fingers and toes well they go blue oh well there's nothing I can do My lungs are in such a state they just do not want to co operate with things I'd like to do they're always wheezy and tight NO I won't give up the FIGHT so when I look in the mirror who do I see I see some one she is not me I am glad my brain is still intact and tells me the person I see is me but looking different than I used to be and the person inside me well she is the same old me Lynn Jarvis
  13. Gloves - Which type are best?

    Hi, I wear silk gloves and socks and they work well. I do wear another pair of gloves over the top when it's really cold. Hope this helps, Lynn
  14. New & having a bad day

    Hi Marnie and Rubydoo, So glad that you have found this site. It is great and everyone is so helpful and friendly so do not be afraid to ask any questions and I'm sure every one will do their best to help you or direct you in the right direction. Whereabouts in the UK do you live? There is a chat on Fridays and Wednesday on the US site about 6.45 onwards (I'm sure someone will correct me if I have the time wrong) Look forward to talking to you in the chat room, Take care Lyndylou
  15. Vasculitis

    Hi. I have a very personal question. Does anyone know if it is safe to have intercourse with vasculitis, due to the blood vessels? Lynn
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