Jump to content
SCLERO.ORG
Sclero Forums

nickisboi25

Members
  • Content Count

    26
  • Joined

  • Last visited

About nickisboi25

  • Rank
    Bronze Member
  1. Hi all! Thank you for your replies. The day is almost here, flying out on Wednesday! I emailed my doctor who happens to have a couple of other patients who have various forms of Scleroderma (what are the chances) and as a result, knows some people at a scleroderma charity. I spoke with them also and this is the advice they both gave me; Apply factor 50 SPF regularly and it should be ok. There is a chance that the existing Morphea will darken. Hopefully as my tan fades after, the Morphea will fade back also. If it returns to the light brownish color it is now, that would be good. Th
  2. Hi all. Haven't posted on here in a long time, hope you are all keeping well. As mentioned in my previous posts I have morphea and the last time I saw a dermatologist about it (maybe a year or so ago), I was told it was in the "burnout" stage. It hasn't really progressed since. Maybe it has just a little or maybe my mind is playing tricks on me because I'm so critical over it. It still doesn't give me pain or complications and I know, especially after reading some of the stories on here, that's ultimately the most important thing. So as of this moment in time it's still purely a cosmetic i
  3. Hi Barefut and Happy New Year! The advice on here is amazing, hopefully I can contribute with my own experiences. Last year was incredibly hard. I, like you, found myself very depressed and spent a good part of 2012 in counselling. As hard as it was (remember guys don't talk about their feelings and all that nonsense) it was the best thing I've ever done. Congratulations on seeing someone. :) As I'm sure you know, it's really an ongoing battle. Even now I have really bad days. Sometimes the smallest things help. Do something that means something to you, no matter how stupid, small
  4. Thank you Joelf and Amanda ;) Amanda, as for monitoring the Morphea, I'll be taking pictures of myself every month to see what progress I'm making at the gym. So I guess I'll have no choice but to see the Morphea too and if it changes or grows. I know that I can see my hard work at the gym in those pictures and not just the marks on my skin;ie my positives aren't clouded by my big negative.
  5. I just wanted to take some time out to say a huge thank you to everyone on these forums. Before I found here, I felt like the only guy in the world going through my problems. You honestly don't understand how much it's helped just having people there that I can talk to and who actually understand what I'm going through. I don't feel so alone anymore. It's been a very difficult year with my personal problems and I've still got a really long way to go. In all honesty I still hate my morphea marks when I see them in the mirror and still long to be just like every other "normal" guy. I'm c
  6. Morphea patches on the right side of my abdomen.
  7. Hi Shelley, Thank you for the really thoughtful reply. Endorphin's! Hearing that word a lot from my friends. I'm sure once I get going I'm gonna love it...it's just getting going. I'd like to not use the makeup for the gym at all but maybe I'm just being too hard on myself and thinking I'm Superman. We'll see how I feel but like you said, the choice is all mine. Sometimes I forget that. It's so easy to feel like this disease takes all your choices away from you by being essentially, uncontrollable in itself, but you've hit on a very important point that some choices are still mine...an
  8. Hi all! Thank you for your replies. The gym induction went really well, seems like a nice place. That being said I got ready to go for a session on Wednesday then found myself having a mild panic attack at the thought of exposing my Morphea and the potential judgement that comes with something as normal as a guy taking his top off to get changed. My friend made an interesting comment, "there's no courage in the absence of fear". I'm gonna be courageous and get in that gym in the new year if I have to cry my eyes out and shake so bad I can't keep still! Regardless of anything my dreams are goin
  9. Hi RaganM, Welcome to the forums, trust me you'll find amazing support and even more amazing people. This is the first time I've commented on someone else's post but I hope I can help. I'm a 25 year old male with Morphea. I started developing darker patches on the right side of my abdomen when I was around your son's age. To this day I've been incredibly fortunate that they haven't really developed into anything more and have never given me pain. Now they just look like patches of darker skin that have a slightly waxy texture to them and are slightly indented. Everyone is different and
  10. Hi all, Thank you for your replies ;) The assessment went really well and I'm starting some work with them in January. New year, new start! Joelf, thank you for the links. I will definitely check them out. Miocean, I love that feeling of "this is who I am". That's definitely what I'm working towards. Shelley, I couldn't agree more. The best accessory is indeed a smile. Shame I'm so self conscious of my teeth, but that's another story! Some dental work will be my birthday present to myself next year :) I've also been fortunate enough to be given a place on a heavily subsid
  11. Hi all, Sorry for the late reply. Been going through a rough patch recently but I'm back ;) Shelley trust me, that guy sat on the floor surrounded by books in the 'Body and Mind' section of the library...that's me! Might just go do that again soon, it's been a while. Montreal, I loved your story. That's the definition of taking ownership. That's one of my long term goals, to own my Morphea. To just be like, okay this is my thing, how do I own it and not let it own or define me. Thanks for sharing. Counselling assessment is tomorrow! Really excited. Like everything in life that's worth
  12. Hi all! Those of you following my posts will be aware I'm in counselling for some personal issues but that's coming to an end in early December. I recently went for a camouflage makeup consultation and while there I found out the same organization offers one to one counselling to. Got my follow up phone-call today and my assessment is on November 27th. As a self confessed therapy junkie this is really exciting! Talking to a stranger about your problems can be daunting but it's done me the world of good. These sessions are more closely targeted to how my Morphea impacts my life. I think
  13. I didn't use it on my face but seeing as people are always advised to take makeup off before they go to sleep, you all might have a point. The skin on our faces is the most sensitive, most probably because it's constantly exposed to the elements. As to where to get hold of it, I only know that information for the UK (specifically London) sorry. I believe Shelley even posted a link to this site's camouflage makeup information on this thread, a couple posts back. Hope this helped a bit; sorry I couldn't do more. One last bit of advice is when you get to experience the makeup, do it with
  14. Hi Shelley, Its classed as camouflage makeup but made by a company that makes all types of "professional" makeup, so basically as you said the kind of makeup used for stage/films. That could be the reason it stays on so well if they've essentially used the same methods as their mainline professional makeup. I obtained mine through a doctor's referral to an organization that does, amongst other things, camouflage makeup consultations (I don't know if I'm allowed to mention the organization's name?). I'm more than happy to provide the names of the brand used to anyone who sends me a PM.
  15. Hi All! Thank you Joelf for the kind words, onwards and upwards indeed! Amanda I completely agree with you that progress is never a straight line and there will no doubt be bumps in the road and steps back. As long as I ultimately progress forward, I'm more than happy to take the bad with the good. Shelley distraction is a really good way of handling the things we aren't so keen on. My friends always tell me confidence and the way I view my Morphea is ultimately what will determine how other people view it. Another age old trick, "If I don't mind, they won't either". While this isn
×
×
  • Create New...