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About RebekahS

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  1. Thank you all for your feedback and greetings. Hopefully I will be able to see a specialist soon. All the best!
  2. Hello everyone. I am 27. I was diagnosed with localized scleroderma, or morphea, about 5 years ago. I had a big spot on my anterior abdomen and a very large area encircling most of my right breast, and a couple of tiny ones. I was diagnosed via biopsy after 3 different fungus creams--that obviously didn't work--and all four doctors at the clinic scratching their heads. The spot on my breast actually dug into my skin so badly that it deformed my breast severely. So, over the past couple of years, the spots got better. The one on my abdomen has gotten really thin (without using the steroid cream) and you can see my veins in the area. The one on my breast has gotten better too. There is still a lot of thick skin, but it has relaxed enough that the shape is closer to normal. Over the last couple of weeks, I have noticed one starting on my left breast. At first, I wasn't sure, but now the thickening has begun as well as the shine. On most of the websites that I have read, it mentions morphea kind of stopping after 3-5 years, sometimes getting a little better; however, I don't recall seeing any that talk about it coming back. My question is, have those of you with morphea (or knowledge of it), heard of it coming back? Do you think if I go to the doctor and get the steroid cream (mine expired long ago and I always forgot to use it) that it will help prevent my left breast from becoming deformed too? Thank you for taking the time :)
  3. I just wanted to say Thank You to all of the responders. I appreciate all of the feedback. I will say that by specialist, I meant rheumatologist. I wasn't even aware that there were scleroderma specialists. Good to know. :) I guess I'll see a general practitioner first--and this time actually tell them everything that is bothering me. (I'm sure I'm not the only one guilty of holding back just so I don't feel like I'm complaining.) I do feel a little better now, and BELIEVE me when I say that I know it could be MUCH worse. And I hope for the best for each and every one of you. :) Thank you! And Happy Holidays! Rebekah S.
  4. I'm a 25 year old female. About 3 years ago, I began to develop scar tissue on my abdomen. It showed up in the shape of a pair of lips (funny)! The next one showed up on my breast, when it covered 1/3 I finally went to the doctor. They prescribed many fungus creams, to no avail, and finally did a skin biopsy of my breast. I was told it was scleroderma. I finally went to a specialist about a year ago. My opinion of the guy is not high. He didn't run ANY tests... and I have bad teeth, always have, he asked if I've ever done meth, when I responded that I haven't, he says, "Are you sure? You know, meth can do that to your teeth."......?!? Not impressed. He said I just have morphea and don't have to worry about ever getting tested again. So, fast forward to the present, the past three weeks my eyes have become extremely sensitive to sunlight, I have to wear sunglasses until the sun goes down or else I'm squinting heavily. My joints have cracked EXCESSIVELY for probably 3 years but especially lately have become increasingly painful. I have frequent muscle spasms, especially under my rib cage (no, not pregnant. lol). I googled the symptoms tonight and found that they are very common in people with progressive systemic sclerosis (or diffuse form). I'm a single mom with a mortgage...I don't have much money right now, going through a rough patch. I'm worried that my condition is not just morphea.... What do you think, should I be worried?
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