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About Jeena

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  1. So sorry for not updating my post earlier and for not acknowledging your responses which I really appreciated. Life has been such a rollercoaster these last few months and I kept hoping I would soon have something concrete to tell you so I kept putting off posting anything. However I finally have a diagnosis and compared to a lot of posts I have read this may have been reached a lot more quickly than most but to me it seems such a long time. Since my last post I did take heed of the advice you kindly offered (G P reduced the steroids quite quickly for me ) and I tried to get an appoint
  2. Thanks for your replies and sorry for my delayed response It's so reassuring to have this forum to express your worries and be safe in the knowledge of gaining sound advice from people who have personal experiences . Amanda it was actually your 'story' that led me to wonder if this was systemic scleroderma. I remember thinking how alike my symptoms were to yours in the beginning,especially about struggling to make it through the day at work. I have now been on sick leave over three months and I also relate to walking like Frankenstein's bride lol ! I viewed the video on sclerodactyly
  3. Morning All Just thought I'd share the outcome of my recent appointment with my rheumatologist. Since I last posted my joint pain continued to increase and my mobility deteriorated due to stiffness in my knees and ankles. I was having major difficulties getting up and down stairs and following an Occupational Therapy assessment was provided with several aids to help around the house. My ability to attend to my self care needs also deteriorated and I have been needing more help from family with dressing ,drying hair, etc. This has been made worse by what I think is a joint contracture in my ri
  4. Thanks for your replies I have had a further appointment with my general practitioner who feels my fingers are curling due to tight tendons rather than tightening of the skin and wants me to see the rheumatologist again before considering any other referrals. I will let you know the outcome. Best wishes Jeena
  5. Hi Everyone I have only recently found this site and am finding the information really helpful. I am 54 and was diagnosed with morphea by my general practitioner a couple of years ago when I developed a large oval patch with lilac edges under my breast followed by a couple of others on my trunk. I had already suspected this was the diagnosis after looking up my symptoms on the web and readily accepted the reassurance that it would clear up in time and no treatment was necessary. Over time more patches have developed all on my front and back plus one patch on my inner wrist. Some of the
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