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Cathey

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About Cathey

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  1. Shelley, Thank you very much for that information, greatly appreciated.
  2. Dear Joelf, Thanks for the list info, was disappointed that Oklahoma has nothing. Disappointed not surprised :). If scleroderma is prevalent in the Choctaw Indian Tribe, why is there no specialist or research center here? I would like for this to change. I am considering contacting the Choctaw Nation of Oklahoma on this issue. I would like to know where I can get a copy of the study done on Scleroderma and the Choctaw Indian? What do you think? Sincerely, Cathey
  3. Hello everyone, my name is Cathey and I was wondering if anyone knows of a scleroderma expert in my area. I live in south east Oklahoma. Desperately seeking one. Any help would greatly be appreciated.
  4. Is vitiligo a symptom of scleroderma?
  5. Shelley,Judy & Joelf, Thank you so much for your response. It really means a lot to me that I have at last found someone that at least knows what I'm talking about. I have felt so alone. When I started chemo I weighed 236 lbs, I now weigh 147 lbs. Can only eat a few bites at a time. Is it true that nothing can be done about this? I truly am so scared. I was told about the Choctaw Indians, there is some Indian blood in my family, not enough to be classified as Indian. And I have always been told that it was Cherokee. Interesting. I haven't discussed stopping the plaquenil with doctor yet, not scheduled to see him again till June. I live 300 miles away from him. That's what I mean about this part of the country. I have seen lots of doctors, but no one is giving answers. I am so upset with being told there is nothing that can be done about the belly issues except to stretch my esophagus. Had this done four times, it never last long. Don't want to come off like I'm sitting on the pity pot, have always been a fighter and won't give up. Will consider all advice. Please forgive my spelling and thank you all so much.
  6. I have been mixing sugar with my body wash. The salt and oil is probably better. Will have to try it, thanks.
  7. I have vitiligo. Started with patches in the bend of my knees when I was nine years old. I am now fifty-five years old and am completely white. It was a relief from being spotted. I was told nothing could be done for this condition. Do you know of any treatment?
  8. Hello everyone, I am thrilled to have found this place. I don't really know where to start. In 1993 I was told I had lupus with over lapping scleroderma. I took predizone for seven years and felt like this was doing more harm than good so I weaned myself off of it, I did improve. I never suffered much until 2009. In 2009 I was diagnosed with stage 3 breast cancer. I under went chemotherapy and radation treatment. During chemo it seemed that the scleroderma exploded. I was desperately seeking relief from the stomach issues I was having. Two GI specialist have told me nothing can be done for that except to stretch my esophagus about every three months. I am seeing a new rheumatologist and was told the same thing. They put me on plaquenil 200mg twice daily. This made my nausea and belly symptoms worse and made me very light headed, I fell a lot. So I stopped taking it. Was this a mistake? I don't go back until June. I live in a very remote part of Oklahoma and the doctor's here don't seem to understand this at all. And truth be known they don't seem to care. Did I goof by stopping the plaquenil? I am so scared, can hardly eat.
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