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Judy Devlin

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Everything posted by Judy Devlin

  1. This is a new story on our main sclero.org website, which was submitted in Italian and has been translated into English by ISN Italian/English translator, Alba Leon. (English) Manu: Daughter of Patient with Systemic Scleroderma Hello everyone, I recently lost my father, and in his last moments he suffered very much. He was affected by systemic scleroderma that began with a simple inflammation of his hand in November of 2006. This degenerated very quickly until the end, on November 3, 2009... (Italian) Manu: Figlia di Padre Malato di Sclerodermia Ciao a tutti, ho perso mio papà una settimana fa, dopo atroci sofferenze. Era affetto da sclerodermia sistemica iniziata con un banale gonfiore di una mano nel novembre 2006. Questo è degenerato molto velocemente fino ad arrivare alla fine, martedi 3 novembre, 2009...
  2. Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end... (Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
  3. (Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
  4. Bill T: Diffuse Scleroderma I was diagnosed in July 2008 with Diffuse Scleroderma. I have consistently digressed since then, and have now been in my handicapped recliner, for the most part, since about July 2009...
  5. Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
  6. Maritere: Mother of Daughter with Morphea It might have been just a regular bruise, but instead of swelling, the skin began to sink, perhaps just milimeters but it was sinking... Maritere: Madre de una niña Morfea (Mexico) Hubiera pasado por un golpe, pero en vez de inflamarse, se empezó a deprimir, quizá sólo milímetros, pero estaba hundida...
  7. Rosú: Sjogren's Syndrome and Hashimoto's Thyroiditis (Italy) Sjogren's causes periferic polyneuropathy, with pain and loss of sensibility in my right hand and arm... (Italiano) Rosú: Sindrome di Sjogren e Tiroidite da Hashimoto (Italia) La Sjogren mi causa polineuropatia periferica con dolore é perdita di sensibilitá alla mano e braccio destro...
  8. (Update) Kristen: Diffuse Scleroderma Well, I made it through the winter, but barely. I went into the hospital with chest pains and trouble breathing...
  9. (Update) Amanda: Diffuse Systemic Sclerosis (U.K.) I have been asked to speak about handling adversity, apparently I do it well. Any sclerodermian could do this because we know adversity by name and continue to overcome it in style...
  10. Missie R: Mixed Connective Tissue Disease I finally asked for an ANA test to check for lupus. My family doctor hesitated because my symptoms were all over the board...
  11. Debs B: Diffuse Systemic Sclerosis (England) This seems to be a long list of ailments that I have been coping with for years, so the addition of diffuse systemic sclerosis did not really panic me...
  12. Marina O: Lichen Planus (Italy) I have visited at least six and each one has given me their own therapy, mostly (Italiano) Marina O: Lichen Planus (Italia) Purtroppo io non ho piú fiduccia nei medici, ne ho visitato almeno 6 e ognuno mi ha datto la sua terapia...
  13. Alex U: Swollen Salivary Gland (Italy) I have spent many months with the swelling on the left side of my face, even my ears, and I think I am developing osteoarthritis... (Italiano) Alex U: Ghindola Salivare Allungata (Italia) Inoltre ho passato molti messi con la parte sinistra gonfia: l’ orecchie, niente il menisco infiammato con una piccola artrosi...
  14. Luca: Difficult Diagnosis, Incomplete (Italy) These are my symptoms: joint pain, bone pain, fever, the inside of my mouth is irritated, as if I had burned it... (Italiano) Luca: Dificulta Diagnosa Incompleta (Italia) Ma io stó davvero male e non so piú che fare, vivo davvero male. Addirittura mi hanno detto che sono sintomi immaginari, ma non é cosí...
  15. Antonellina: Lupus (Italy) I am forty-eight, and eight years ago I was diagnosed with lupus... (Italiano) Antonellina: Lupus (Italia) Ho 48 anni, e otto anni fa mi hanno diagnosticato il lupus...
  16. Dodo: Limited Systemic Scleroderma (Italy) The tips of my fingers turned cold, and then became cyanotic, always hurt and in the end they became ulcerated... (Italiano) Dodo: Sclerodermia Sistemica Limitata (Italia) Ho iniziato ad avere alcune punte delle dita delle mani molto fredde, che in pochi giorni diventarono prima cianotiche, sempre piú doloranti e infine presentarono delle ulcere...
  17. Pieranna: Daughter of Mother with Sjögren's Syndrome (Italy) My mother was just recently diagnosed with Sjögren's Syndrome, after years of joint pain and dry mouth... (Italiano) Pieranna: Sindrome di Sjogren (Italia) Ieri la mia madre é stata diagnosticata con il Sindrome di Sjögren, dopo anni di dolori alle articolazioni e secchezza orale...
  18. Katia C: Sister of a Scleroderma Patient (Italy) She is in the acute phase of the illness, and she has a hardened skin, third degree, that has affected her hands, arms, chest and legs... (Italiano) Katia: Fenomeno di Raynaud con Sclerodermia Diffusa (Italia) In conseguenza ha una crisi renale sclerodermica che gli ha alzato la presione e gli ha provocato una ischemia...
  19. Ely E: Linear Scleroderma (Italy) She took me to the dermatologist who discovered another spot that ran through my left leg from the stomach towards the back... http://www.sclero.or...y-e/a-to-z.html (Italiano) Ely E: Sclerodermia Lineare (Italia) Cioé che mi sarebbe rimasta la macchia piú scura ma che non mi avrebbe provocato altri probleme in teoria...
  20. Nikhath: Linear Scleroderma (India) I hide my hands from everyone and because of this behavior of mine, people assume that I am shy...
  21. Dorne: Overlap and Possibly CREST Since 2002 I have been diagnosed with Lupus, Sjogren's Disease, B12 deficiency, mild pulmonary hypertension, Celiac disease, Type II diabetes and now the specialists are seriously talking about CREST...
  22. (Update) Dorothy: CREST Scleroderma for 39 Years I've learned many things over the years and the most important is having a positive attitude no matter what incurable affliction one has...
  23. Kathy: Generalized Morphea Scleroderma I finally pressured another doctor for a referral to a dermatologist and had a biopsy done and was finally told morphea scleroderma...
  24. Yvette: Undifferentiated Connective Tissue Disease (UCTD) and Thyroid Cancer For now, I have accepted that the diagnosis of my core problem is not important. The way I choose to deal with it is...
  25. Karligash: Systemic Scleroderma (Republic of Kazakhstan) Young, beautiful, full of hope and expectations for my life, for happiness and love — that was me, 19 years of age... (Russian) Карлыгаш: ÑиÑÑ‚ÐµÐ¼Ð½Ð°Ñ ÑÐºÐ»ÐµÑ€Ð¾Ð´ÐµÑ€Ð¼Ð¸Ñ (РеÑпублика КазахÑтан) МолодаÑ,краÑиваÑ,Ð¿Ð¾Ð»Ð½Ð°Ñ Ð¾Ð¶Ð¸Ð´Ð°Ð½Ð¸Ñ Ð¾Ñ‚ жизни ÑчаÑÑ‚ÑŒÑ,любви Ñ‚Ð°ÐºÐ°Ñ Ñ Ð±Ñ‹Ð»Ð° в 19 лет...
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