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Judy Devlin

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Everything posted by Judy Devlin

  1. (Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
  2. Sharon H: Scleroderma/Morphea It has been thirty-two years living with this and it has progressively gotten much worse and has spread...
  3. Teena: En Coup De Sabre My mother and I went to Johns Hopkins Hospital. They did what was called 'Grand Rounds' where about fifty doctors were looking at me taking pictures and videotaping me...
  4. Update) Kristen: Diffuse Scleroderma I am still in shock that it has been six years! Wow! I didn't think I would make it, and I know that my doctor didn't think so either... (Update) Tami: Morphea Scleroderma I have, of course, had to give up working, which is okay because I know that I was not able to give my patients my full attention because I didn't feel good. I am an X-ray technician... (Update) Amanda: Diffuse Systemic Sclerosis It's been just over a year since I took home the diagnosis of scleroderma, and I may as well have taken home a dozen chimps, they would have been less disruptive and more productive...
  5. Lucy's Mum: Mother of a Linear Scleroderma Patient I googled 'my daughter has thinning hard skin' and this sclero.org website came up... Dorothy: Scleroderma CREST For this reason I convened a meeting in South Africa to help encourage many others with scleroderma...
  6. Donna: CREST, Raynaud's, possible Fibromyalgia I was diagnosed with CREST (Limited Systemic Scleroderma) by a rheumatologist in 2006. This wasn't really a surprise to me as my mother was diagnosed with diffuse scleroderma in 1998...
  7. Jessica G: Parry-Romberg Syndrome By the time I was about five years old, the disease had already disfigured my left side drastically. I have had over fifty operations and surgical procedures for Romberg's....
  8. Leslie R: Scleroderma, Vitiligo, Lupus, Anemia, Hypertension and Type 2 Diabetes He told me that I have scleroderma and explained what this disease is about. After suffering so long I finally got some answers...
  9. Jaci: MCTD and Autoimmune Hepatitis Out of fear of going back to the doctors, I tried just to live with it, whatever it was. What I found strange was that nobody seemed to noticed how terrible I was feeling, not even the doctors...
  10. Heather: Vitiligo, Hypothyroidism, and now Linear Morphea I am not too concerned about the other two conditions since there really is nothing you can do about the vitiligo, and the thyroid is under control. The morphea is what is bugging me...
  11. Amanda: Diffuse Scleroderma Systemic Sclerosis I am thirty-nine years old and was diagnosed with diffuse scleroderma systemic sclerosis in August 2007...
  12. Jennifer M: Mom of Linear Morphea Patient Almost the minute that the doctor walked into the room she knew what it was. Her first words out of her mouth was "that's linear morphea"...
  13. (Update) Sara P: CREST Syndrome This seems to be progressing as time goes on. But so far I still have no internal involvement and my lungs are doing fine...
  14. Theon: Scleroderma and Pneumothorax This is very hard for me, because I was a very active woman, and then suddenly I am totally and completely disabled...
  15. Update) Bill: Diffuse Scleroderma When I quit drinking milk, not only did the cough from the pneumonia lessen but my chronic night cough disappeared entirely within a couple of days... http://www.sclero.org/scleroderma/support/stories/engl...ill/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  16. I just heard about Sherrill's death. Sherrill was such an inspiration and a dear friend. We both came on board with ISN in the very early days and worked together on many early projects especially the Voices of Scleroderma book series. I have so many huge emails from her as we gabbed often from New Zealand to New Hampshire. She will be dearly missed. I am glad, however, that she is finally at peace and off all those machines. Sherrill, give my best regards to Julie and Jill. I miss all of you so much! Judy Devlin
  17. (Update) Rosebud: Diffuse Scleroderma with Raynaud's, Diabetes, Depression and Anxiety Hopefully this update will touch all of you who are in doubt or pain or just on the edge of giving up please always remember there is a light at the end of the tunnel... http://www.sclero.org/scleroderma/support/stories/engl...bud/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  18. Sue D: Diffuse Scleroderma Pain developed in my hands, then I noticed pain in my knees, then my shoulders, down my back, elbows, hips, feet...
  19. Doris: Morphea I was diagnosed with morphea in 2006. It started with itching that would not stop and now after a year and a half later it is still itching and painful... http://www.sclero.org/scleroderma/support/stories/engl...ris/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  20. Update) Maggie M: Lichen Sclerosus et Atrophicus and Generalized Morphea After having UV light therapy all summer, my skin started to improve slightly in July, and I stopped treatments the last part of October 2007... http://www.sclero.org/scleroderma/support/stories/engl...e-m/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  21. (Update) Kathy Baker: CREST - Systemic Scleroderma Two weeks later I was back in surgery where he amputated the entire index finger... http://www.sclero.org/scleroderma/support/stories/engl...ker/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  22. Joanna: Morphea The first dermatologist said I had more spots than he could find on any one person in his medical books and treated me with a steroid tape that I had to cut into the shape of each spot on a daily basis... http://www.sclero.org/scleroderma/support/stories/engl...nna/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  23. Mary L: Morphea My mom had the department of child services call on her because someone said I was all "bruised". I was denied enlistment into the United States Army because of this disease... http://www.sclero.org/scleroderma/support/stories/engl...y-l/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  24. Kym P: Morphea It started almost seven years ago, when I developed an odd looking bruise about the size of a quarter on my shin. The next couple of years it slowly changed... http://www.sclero.org/scleroderma/support/stories/engl...m-p/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  25. Terri: Subcutaneous Morphea I was finally diagnosed with deep morphea (or subcutaneous morphea) around mid February 2007, after having a biopsy... http://www.sclero.org/scleroderma/support/stories/engl...rri/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
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