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Judy Devlin

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Everything posted by Judy Devlin

  1. Anita G: Localized Scleroderma This all started as a small spot that I thought was insignificant, but as time went on, it grew, along with my symptoms... http://www.sclero.org/scleroderma/support/stories/engl...a-g/a-to-z.html (Español/Spanish) Anita G: Esclerodermia Localizada También comencé con una manchita que creí insignificante pero con el tiempo se extendió, y se fueron agravando los síntomas... http://www.sclero.org/lang/spanish/historia-anita-g.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  2. Robin T: CREST Syndrome My hands were always cold and turning white, purple then red then back to normal, and hurting. Then I developed a sore on my finger tip that wouldn't go away...
  3. Marion: Friend of Systemic Scleroderma Patient Bridget was diagnosed about seven years ago with systemic scleroderma with signs of stiffness in parts of her body and taut skin, mainly on her hands, arms and face...
  4. Rubie: Linear Morphea Scleroderma I was referred to a dermatologist and was finally diagnosed with linear morphea at the age of four...
  5. Stacie: Linear Scleroderma I may have been incurable at four years old but it gave me an insight. I appreciate my life so much more than I would have thought. It could be worse...
  6. (Update) Jon T: Eosinophilic Fasciitis The disease has spread throughout my entire body, making getting out of a chair, bed, or doing just about anything, very difficult...
  7. (Update) Marian: Watermelon Stomach Since posting my story here, people have been writing to me about watermelon stomach or GAVE...
  8. (Update) Donna C: UCTD I started shots of methotrexate and finally got this disease under some control...
  9. (Update) Kristen: Diffuse Scleroderma I didn't think that I would make it through even the first five years. If you read the medical books, they are all full of doom and gloom. But, hey, here I am...
  10. Sarah H: Linear Scleroderma When I was very young, two or three years old, my mom started to notice that the top of my scalp was changing...
  11. Susan L: Diffuse Scleroderma I first noticed the swelling in my hands and feet shortly after my daughter was born in 2005, and thought that it was post-pregnancy fluid...
  12. Emma C: Living with Localized Morphea Some of my earliest childhood memories are of my mother taking me to see doctors who were baffled by the strange marks on my back...
  13. Julie H: Sjogren's Syndrome, Polymyalgia Rheumatica, and Peripheral Neuropathy I am in pain all of the time, have trouble sleeping, and if I do not take a muscle relaxer every night, I will not be able to turn my head the next day...
  14. Francia: Undiagnosed I have a lot of pain in the back of my neck and problems with my throat when I eat...
  15. Allen's Mom: Son has Scleroderma With his tightness of skin he has a very hard time bending, walking up the stairs and for the most part he cannot walk for more than a few minutes without his legs giving out...
  16. Irina: Polymyositis When I was nine I had my tonsils removed by surgery. Immediately after the operation I experienced muscle weakness and I had no strength to do everyday things as simple as walking or even getting up from bed...
  17. Joshua: Morphea My morphea doesn't look like most. In fact, it looks almost star-shape, mostly because it is in lines and not a solid shape. It is not hard either, so my fear is that it could be keloid morphea...
  18. (Update) Doni: CREST Syndrome I had my finger amputated in August, 2005, and then again in August 2006. The first time they didn't take enough off the finger, so it abscessed again..
  19. (Update) Jill K: Lupus with GAVE (Watermelon Stomach) I have now been diagnosed with Mixed Connective Tissue Disease (originally I was told I had Lupus.)...
  20. Tata P: Diffuse Scleroderma I am thirty-two years old, and I have been suffering this illness since I was nine... http://www.sclero.org/scleroderma/support/stories/engl...a-p/a-to-z.html (Español/Spanish) Tata P: Esclerodermia Difusa Hola, tengo 32 años, y padezco esta enfermedad desde los 9... http://www.sclero.org/lang/spanish/historia-tata-p.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  21. Carlos S: Son of Father with Diffuse Systemic Sclerosis (Diffuse Scleroderma) My father is a simple man, he works the land, and does not have a great degree of schooling, but if there is something he has been taught is to never give up... http://www.sclero.org/scleroderma/support/stories/engl...s-s/a-to-z.html (Español/Spanish) Carlos S: Hijo- Sistémica Difusa Mi papá es un hombre simple, del campo, no tiene muchos estudios, pero si hay algo que a él no le enseñaron fue a desistir... http://www.sclero.org/lang/spanish/historia-carlos-s.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  22. Tore: Linear Scleroderma However, as time went by, the patch extended, and the hardening, instead of going down, got worse, involving more and more parts of my leg, all the way to my knee...http://www.sclero.org/scleroderma/support/stories/english/t-u/tore/a-to-z.html (Italiano) Tore: Lineare La cute ma anche I tessuti sottocutanei risultavano induriti. In realtà sembrava che la pelle si fosse completamente attaccata all'osso, dal quale era impossibile smuoverla... http://www.sclero.org/lang/italian/storia-tore.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  23. Jon T: Eosinophilic Fasciitis I am stumped as to the possibility for me to return to normal duties at work, and what the normal prognosis for someone with this disease can expect? http://www.sclero.org/scleroderma/support/stories/engl...jon/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  24. Ginger: Generalized/Linear Scleroderma After analyzing all the test results and my medical records the neurologist attributed the muscle atrophy to the linear scleroderma... http://www.sclero.org/scleroderma/support/stories/engl...ger/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  25. Barbara H: Generalized Essential Telangiectasia About five years ago some specialists at St, Vincents Hospital had a symposium and I was one of the subjects but they did not have anything to assist me. Laser could help but was very expensive... http://www.sclero.org/scleroderma/support/stories/engl...a-h/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
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