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Judy Devlin

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Everything posted by Judy Devlin

  1. Laura H: Mother of Son with Linear Morphea What started as a bruise in his forehead, has come down to his nose, and his forehead has sunk a bit... http://www.sclero.org/scleroderma/support/stories/engl...a-h/a-to-z.html (Español/Spanish) Laura H.: Morfea Lineal Al principio no le dí mucha importancia porque pasaba el tiempo y seguía igual, pero ahora pasado un año todo ha cambiado... http://www.sclero.org/lang/spanish/historia-laura-h.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  2. Mark: Systemic Scleroderma It wasn't until 2003 when I finally saw a doctor. They told me I had scleroderma and that I would live maybe five years... http://www.sclero.org/scleroderma/support/stories/engl...ark/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  3. Phyllis C: Scleroderma How many new cases are coming up now from people that were at the World Trade Center? I was there along with co-workers that are very ill now... http://www.sclero.org/scleroderma/support/stories/engl...s-c/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  4. Lindsey Z: Morphea Scleroderma I was self conscious in fear that others would care, or find me ugly because of it... http://www.sclero.org/scleroderma/support/stories/engl...y-z/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  5. (Update) Laurie (Bioteach): CREST Syndrome I suffered a severe depression including hospitalization and electro-convulsive therapy... http://www.sclero.org/scleroderma/support/stories/engl...rie/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  6. Georgina: Mother of Child with Morphea The only thing I know about it is what her doctor told me, namely that it has no cure... http://www.sclero.org/scleroderma/support/stories/engl...ina/a-to-z.html (Español/Spanish) Georgina: Madre de Paciente con Morfea Lo único que sé es que es una enfermedad incurable, por que es lo único que me explico su doctor... http://www.sclero.org/lang/spanish/historia-georgina.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  7. Caroll: Morphea I would like to know from someone who has children, as to whether my daughter can develop the same thing... http://www.sclero.org/scleroderma/support/stories/engl...oll/a-to-z.html (Español/Spanish) Caroll: Morfea No se si alguien tenga hijos porque me preocupa demasiado saber que mi hija pueda desarrollar lo mismo... http://www.sclero.org/lang/spanish/historia-caroll.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  8. Jason G: Morphea I went to see a rheumatologist, who unfortunately originally told me that morphea has been known to lead to systemic sclerosis. Obviously, he was wrong about this, and later admitted that he spoke too soon... http://www.sclero.org/scleroderma/support/stories/engl...n-g/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  9. Stephanie L: Morphea I have also had numbness in my arms, legs and face for the past two months. The doctors do not believe they are related to each other, but it does seem strange that it happened within the same year... http://www.sclero.org/scleroderma/support/stories/engl...e-l/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  10. Vivian: Morphea Truth is that for now my health hasn't been too effected, but emotionally it becomes quite hard... http://www.sclero.org/scleroderma/support/stories/engl...ian/a-to-z.html (Español/Spanish) Vivian: Morfea La verdad es que por ahora no me ha afectado en mi salud pero sí emocionalmente pues es difícil... http://www.sclero.org/lang/spanish/historia-vivian.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  11. Myle: Morphea I went to a dermatologist, who at first told me it was some type of fungus and treated me accordingly. But the spot kept on growing and changing in colour and aspect... http://www.sclero.org/scleroderma/support/stories/engl...yle/a-to-z.html (Español/Spanish) Myle: Esclerodermia Morfea Fui con un dermatólogo que en principio me dijo que era un hongo, y me envió un tratamiento para los hongos, pero la mancha seguía creciendo, y cambiando de color y aspecto... http://www.sclero.org/lang/spanish/historia-myle.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  12. Susie L: Raynaud's (and Scleroderma, too?) I have been told that I "probably" have scleroderma in the early stages by one doctor, that it is unlikely by another, and that I almost certainly do have it by yet another... http://www.sclero.org/scleroderma/support/stories/engl...e-l/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  13. Andrea H: Mother of Son with Facial Morphea I am the mother of a six year old boy called Alex who is suffering from facial scleroderma... http://www.sclero.org/scleroderma/support/stories/engl...a-h/a-to-z.html Jane D: Linear Morphea (En Coup de Sabre) In August 2006, I found another dent in my head, but this one was deeper and longer and just to the left of the first one... http://www.sclero.org/scleroderma/support/stories/engl...e-d/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  14. Joe Joe: Morphea Because such a large area of my body is attacked my doctors believe that my internal organs are also affected... http://www.sclero.org/scleroderma/support/stories/engl...joe/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  15. Alegria: Fibromyalgia (Israel) My hands, legs and shoulders hurt in a very distinctive manner; my fingers are paralyzed with pain, and sometimes I get strong headaches... (Español/Spanish) Alegria: Fibromialgia Me duelen las manos, las piernas, los hombros, de maner extraña; los dedos se me paralizan del dolor, y en ocasiones me duele la cabeza... Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  16. Jen: Scleroderma Morphea About six weeks ago, I hit a low when I discovered new spots on my arms and neck... http://www.sclero.org/scleroderma/support/stories/engl...jen/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  17. Jason: Linear Scleroderma I have recently been diagnosed with Raynaud's as well, have had gastrointestinal difficulties more common to systemic forms, and have witnessed these lesions grow and deepen rather than decrease in size... http://www.sclero.org/scleroderma/support/stories/engl...son/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  18. Kerrie: CREST Syndrome with Limited Scleroderma If I was not stressed before I went in, I certainly was then. I am going to get referred on to see someone different. Hopefully, I will be luckier second time around... http://www.sclero.org/scleroderma/support/stories/engl...rie/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  19. Ariel M-S: Linear Morphea Within six months, the morphea had eaten away almost all of the fat on my arm and I have developed nerve and muscle pains that do not go away... http://www.sclero.org/scleroderma/support/stories/engl...m-s/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  20. Marina C: CREST Patient (Spain) I am a patient who was diagnosed with CREST five years ago, however I had symptoms for a long time before that... http://www.sclero.org/scleroderma/support/stories/engl...a-c/a-to-z.html (Español/Spanish) Marina C: Paciente de CREST Soy una paciente diagnosticada de Crest hace 5 años, con síntomas de la enfermedad desde mucho tiempo atrás... http://www.sclero.org/lang/spanish/historia-marina-c.html Lesley: CREST Scleroderma I started choking on food. I was told it was globus. My hands went white in the cold... http://www.sclero.org/scleroderma/support/stories/engl...ley/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  21. Lina: Morphea Scleroderma I am twenty-five years old and two weeks ago I was diagnosed with scleroderma. I went to see a rheumatologist and he said my case wasn't very important... http://www.sclero.org/scleroderma/support/stories/engl...ina/a-to-z.html (Español/Spanish) Lina: Esclerodermia Morfea Tengo 25 años y hace 2 semanas me diagnosticaron esclerodermia. Fui con reumatólogo y le restó importancia a mi caso... http://www.sclero.org/lang/spanish/historia-lina.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  22. Marina F: Sjogren's Syndrome and Vitiligo (Italy) For quite a few years now I have had problems such as eczema in my ear, vitiligo, nodules in the thyroid, dry eyes with a positive Schirmer's test, and vertigo... http://www.sclero.org/scleroderma/support/stories/engl...a-f/a-to-z.html (Italiano) Marina F: Sindrome di Sjogren, Vitiligo Ho 47 anni e da diversi anni soffro di vari problemi quali: eczema alle orecchie, vitiligine, noduli tiroidei, secchezza oculare con test di schirmer positivo, e vertigini... http://www.sclero.org/lang/italian/storia-marina-f.html Mary B: Scleroderma En Coup de Sabre I feel like it is tearing my head open. Sometimes I get headaches, and I believe it is because of this illness... http://www.sclero.org/scleroderma/support/stories/engl...y-b/a-to-z.html (Español/Spanish) Mary B: Esclerodermia en Golpe de Sabre Por el contrario siento que se me está haciendo una enorme brecha en la cabeza. A veces me dan dolores de cabeza y creo que es por causa de esta enfermedad... http://www.sclero.org/lang/spanish/historia-mary-b.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  23. Babi: My Boyfriend has Scleroderma (Italy) He has to go to the hospital for at least four days and get a sort of chemotherapy... http://www.sclero.org/scleroderma/support/stories/engl...abi/a-to-z.html (Italiano) Babi: Sindrome della Sclerodermia Non so dire di preciso di che tipo è so solo che almeno una volta al mese deve andare in ospedale e stare li per almeno 4 giorni e fare una specie di chemioterapia... http://www.sclero.org/lang/italian/storia-babi.html Kon: Lichen Sclerosus et Atrophicus The doctor told me to use tacrolimus ointment and take plaquenil pills. I had an improvement the first two months, but the condition still remains... http://www.sclero.org/scleroderma/support/stories/engl...kon/a-to-z.html Rosebud: Diffuse Scleroderma My hands are the worst. They are completely swollen, red, itchy, with burning sensation and in pain constantly... http://www.sclero.org/scleroderma/support/stories/engl...bud/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  24. Maggie M: Lichen Sclerosus et Atrophicus and Generalized Morphea I had to seek medical help when I realized that it was spreading and getting considerably worse... http://www.sclero.org/scleroderma/support/stories/engl...e-m/a-to-z.html (Update) Bill: Diffuse Scleroderma I don't have much of an appetite, have difficulty swallowing and fill up quickly so eating just isn't as appealing as it used to be... http://www.sclero.org/scleroderma/support/stories/engl...ill/a-to-z.html Judy Devlin ISN Archive Committee Chair International Scleroderma Network http://www.sclero.org/isn/hr/bio/devlin-judith/en.html
  25. Julian: Morphea About thirteen years ago I got a little white spot in my thigh (coin-like)... (Espanol) Julian: Morfea Hace como 13 anos me salio una mancha blanca pequena (en forma de moneda)... Gingy: Localized Scleroderma (Italy) In September 2006 I was told that I might have localized sclerodermia after I discovered dark marks and my skin hardened in my left forearm... (Italiano) Gingy: Sclerodermia Localizzata A settembre 2006 mi viene detto che potrei avere la sclerodermia localizzata poiché sull'avambraccio sinistro ho la pelle "dura" e delle macchie scure... Claudia: Systemic Scleroderma Nature is wise, no doubt about it, when something is wrong with our body we have to pay attention... (Espanol) Claudia: Escleroderma Sistemica No cabe duda que la naturaleza es sabia y que cuando algo falla en nuestro cuerpo u organismo hay que hacerle caso, puesto que mi novio inicio con síntomas que a él le parecieron insignificantes en un momento...
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