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About shazzer1976

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    Bronze Member
  1. Thanks, guys. I don't think I have difficulties swallowing, just well developed gag reflexes! I'm seeing a gastro-enterologist. My general practitioner is recommending a barium meal. I'm not even sure I am up against Scleroderma. I'm still waiting on a letter from the haematologist I saw and a trip to a rheumatologist. I'm back on the Lansoprazole in the meantime. My general practitioner was suggesting IBS when I went to see her. I don't know. At the minute I'm grateful to have a lull in some of the symptoms I had been experiencing. Even the Raynaud's is not as bad as it has been. I even managed to survive the great outdoors yesterday without gloves and my feet were warm in bed for the first time in months. I really feel for anyone with the issues associated with Scleroderma being out through this sort of a procedure! Thanks for all your good wishes.
  2. Update. Tried to have my OGD today. Three attempts, no success! I just couldn't tolerate it. I felt like I was choking, retching, suffocating all at the same time. I even had sedation on the third attempt. Nothing to show for it apart from drowsiness and a headache. Feel Ike I have wasted everybody's time.
  3. It's my favourite type of weather (ironically!). The sun is shining, there not a cloud in the sky and it is very crisp (freezing). It's so hard to sit here at my desk and work... which is why I am on this forum. I am listening to birds singing. The days are stretching. I did not need dipped headlights on the way to work and I think I might even see daylight when I get home. I really want to get my layers on and give my legs a good stretch... Before I do that I reckon I have some work to do. Hope you are all having a good day wherever you are and whatever you are doing.
  4. Thanks JudyT, I think I overdid the exercise yesterday with a 10 mile run! Oops! I'm feeling quite fatigued today and drinking lots of water and eating back those calories...(Running is maybe not the best form of exercise for weightloss. I think you either eat back the calories you use while running or you sleep until some of the energy you have consumed is compensated for. ) Anyway, to get to the point, something very odd happened on my run. I thought I was in danger of having to remove one layer of gloves as my hands became warm for the first time in donkeys! The finger tips not so much so I perservered with the layers anyway! Day 4 without the Lansoprazole and I am noticing the difference. I am not in agony but I have that uncomfortable feeling. I wish there was another test other than an OGD to look into your stomach that would be as effective and telling. I'm really not looking forward to this procedure at all or what it might reveal. I guess this is a lesson in patience and courage. I think the members on this forum show amazing courage and fortitude. I hope that is not too gushing. Wishing you all a good day. Shazzer
  5. Hi, I just wanted to post a quick word of thanks to the two members who replied to my posts. I have been paying more attention to keeping my hands warm, wearing fingerless gloves while I am work. I got a few curious looks but people will just have to get over themselves! I went to bed last night with a pair of gloves on and oil on my hands. That has made a good difference to the dryness. I feel like a bit of a fraud though because I have just been out for a nice run. In fact I think I made my best time to date. I don't understand how I can feel so healthy on one hand but have these other things happen to me on the other. Incidentally I had several layers of gloves on and my winter running gear. My hands behaved quite well. It is a little milder today. Two days ago my fingers felt like they had been slammed in a door while I was running. I do hope this is a hobby I'll still be able to pursue to some extent! It gives me such a buzz and I love getting fresh air! (Plus I entered my first marathon this year.) I'm off my acid inhibitor tablets as of today before the OGD so I'm not looking forward to the acid reflux. I had a bit of reflux while I was running but it wasn't as bad as it has been in the past. Maybe because my stomach has had a chance to heal. I'll stick to very plain food. Sometimes the most innocent looking food can give me horrible indigestion. I appreciate the good wishes and I'm keeping my hopes up. Business as usual here.
  6. This is my first post on this forum. I have not been given an official diagnosis yet that I have this illness so I am trying to stay positive and I have seen some very positive stories of people getting with life as close to normal as possible. I have had Raynaud's for a number of years now but recently it has become more severe and has spread to other parts of my body, feet, nose and lips in particular. Even if I am not having a full blown attack, my finger tips remain bluish and cold and I have had my first 'hack' on one of my finger tips due to skin drying out and becoming quite thin and taut. I have taken moisturising my hands a lot more seriously since that happened. I notice other changes in my hands. The skin on my knuckles is usually quite red and ruddy in appearance and I have what I would call sausage fingers and puffy hands. I am being sent to have an oesophago-gastroduodenoscopy ( OGD) in a couple of weeks as I have near constant heart burn and acid reflux. Sometimes I find swallowing quite painful and I have the sensation of food getting stuck in my gullet. The doctor gave me tablets to take to prevent the heart burn and if I forget to take them I suffer for it that day. I notice if I have been exercising - either lifting weights or running - I can experience a horrible burning sensation in my throat. I went to the doctor before holiday because of weekly visual migraines. When a neurologist saw me, he suggested they were probably brought on by stress and tiredness, and while I know there is definitely an element of truth in this, I am curious to know whether there could be a connection between this illness and this type of migraine. The doctor ran a lot of blood tests on me before holiday and I am doing the rounds of the hospital seeing different specialists. Curiously she was not so quick to refer me to rheumatology even though the tests she ran showed positive for various autoimmune anti-bodies. She eventually made a referral for me when I went to see her recently and she saw what my hands are like during an attack. I have been to gynecology due to having very large cysts on my ovaries (not sure if there is a connection?) and haematology. Both consultants have queried whether I have been sent to rheumatology. I saw the haematologist yesterday because of raised platelets. He mentioned that he thought a lot of the symptoms and problems I have been experiencing lately could be connected and he said he was going to write to my general practitioner to strongly recommend that I see a rheumatologist. The bizarre thing is I feel fine at the minute apart from the Raynaud's. I went running a couple of days ago and my fingers felt like they had been slammed in a door. I do have a history of Grave's Disease so it would not be beyond the realms of possibility to develop another autoimmune condition. I'm not entirely sure what the purpose of posting this is! I am looking for information and my search led me to this website. When I eventually get my referral, I'll be telling my consultant how to do their job... Perhaps not the best thing in the world... Thanks for reading.
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