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shazzer1976

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Everything posted by shazzer1976

  1. Thanks, guys. I don't think I have difficulties swallowing, just well developed gag reflexes! I'm seeing a gastro-enterologist. My general practitioner is recommending a barium meal. I'm not even sure I am up against Scleroderma. I'm still waiting on a letter from the haematologist I saw and a trip to a rheumatologist. I'm back on the Lansoprazole in the meantime. My general practitioner was suggesting IBS when I went to see her. I don't know. At the minute I'm grateful to have a lull in some of the symptoms I had been experiencing. Even the Raynaud's is not as bad as it has been. I even man
  2. Update. Tried to have my OGD today. Three attempts, no success! I just couldn't tolerate it. I felt like I was choking, retching, suffocating all at the same time. I even had sedation on the third attempt. Nothing to show for it apart from drowsiness and a headache. Feel Ike I have wasted everybody's time.
  3. It's my favourite type of weather (ironically!). The sun is shining, there not a cloud in the sky and it is very crisp (freezing). It's so hard to sit here at my desk and work... which is why I am on this forum. I am listening to birds singing. The days are stretching. I did not need dipped headlights on the way to work and I think I might even see daylight when I get home. I really want to get my layers on and give my legs a good stretch... Before I do that I reckon I have some work to do. Hope you are all having a good day wherever you are and whatever you are doing.
  4. Thanks JudyT, I think I overdid the exercise yesterday with a 10 mile run! Oops! I'm feeling quite fatigued today and drinking lots of water and eating back those calories...(Running is maybe not the best form of exercise for weightloss. I think you either eat back the calories you use while running or you sleep until some of the energy you have consumed is compensated for. ) Anyway, to get to the point, something very odd happened on my run. I thought I was in danger of having to remove one layer of gloves as my hands became warm for the first time in donkeys! The finger tips not so m
  5. shazzer1976

    image

    From the album: Raynaud's

  6. shazzer1976

    image

    From the album: Raynaud's

  7. Hi, I just wanted to post a quick word of thanks to the two members who replied to my posts. I have been paying more attention to keeping my hands warm, wearing fingerless gloves while I am work. I got a few curious looks but people will just have to get over themselves! I went to bed last night with a pair of gloves on and oil on my hands. That has made a good difference to the dryness. I feel like a bit of a fraud though because I have just been out for a nice run. In fact I think I made my best time to date. I don't understand how I can feel so healthy on one hand but have these
  8. This is my first post on this forum. I have not been given an official diagnosis yet that I have this illness so I am trying to stay positive and I have seen some very positive stories of people getting with life as close to normal as possible. I have had Raynaud's for a number of years now but recently it has become more severe and has spread to other parts of my body, feet, nose and lips in particular. Even if I am not having a full blown attack, my finger tips remain bluish and cold and I have had my first 'hack' on one of my finger tips due to skin drying out and becoming quite thin
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