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About IHaveEnCoupDeSabre

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Rank
Newbie
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Location
Australia
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Hi everyone. Firstly I'd like to say how truly nice it is to "meet" others just like me. Until last week, I thought I may even be the only living person with en coup de sabre. So thank you all for gathering here. Secondly, I'll give a brief overview of me; My name is Amy. I am 29 years old, mother of two (a 7 year old and 4 year old, both of which are perfectly healthy specimens) woman from Australia. I had zero symptoms of scleroderma en coup de sabre until I turned 15. At that point a blue line appeared on my forehead that quickly changed to brown and the inch of hair above it fell out.
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Just diagnosed with en coup de sabre
IHaveEnCoupDeSabre replied to Paula lesley's topic in UK Scleroderma
Hello Paula My name is Amy, and as my username suggests, I have En coup de sabre. I've had it for 15 years now. Our condition is very rare, but we are not alone. If you are still frequenting these forums, I will answer questions you have, the best I can. Best wishes, Amy.