Hi everyone. Firstly I'd like to say how truly nice it is to "meet" others just like me. Until last week, I thought I may even be the only living person with en coup de sabre. So thank you all for gathering here. Secondly, I'll give a brief overview of me; My name is Amy. I am 29 years old, mother of two (a 7 year old and 4 year old, both of which are perfectly healthy specimens) woman from Australia. I had zero symptoms of scleroderma en coup de sabre until I turned 15. At that point a blue line appeared on my forehead that quickly changed to brown and the inch of hair above it fell out.
Hello Paula My name is Amy, and as my username suggests, I have En coup de sabre. I've had it for 15 years now. Our condition is very rare, but we are not alone. If you are still frequenting these forums, I will answer questions you have, the best I can. Best wishes, Amy.