Hi all,
My name is Yvette and I am new to this forum. My mum had progressive systemic sclerosis scleroderma, she was diagnosed at 28 and gradually lost all of her mobility until she died at 42. She had the classic facial mask and claw like hands, all internal organs were affected, she suffered a lot.
I am now 35 and have a serious aversion to doctors! I have suspected for years that I have Raynaud's, fingers turn white in the cold and become very painful. Recently I have had problems breathing, and my fingers have been going purple even when it is hot.
I am in Algeria at the momen
