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About simpson72

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  1. Went to the doctor and asked about the PPIs. It seems they are only an issue when methotrexate is being taken in higher doses, such as in cancer patients. The doctor prescribed folinic acid (FA) (Leucovorin) to help combat the side effects of the methotrexate. So, we'll add it in this Saturday and hope that it helps. Still struggling with the side effects of the prednisone as well. Our only other option if my daughter's system doesn't adjust to them soon is switching to infusions instead of pills. Apparently this can help with the nausea/pain as the medication bypasses your stomach. Anyone have any experience with this?
  2. Thanks so much for the information. We are headed back to the doctor on Wednesday and I will ask about mixing the methotrexate with the PPIs.
  3. My daughter was recently diagnosed with Morphea en coup de sabre. She started a treatment regime of prednisone and methotrexate injections about 3 weeks ago. Unfortunately, we have not been able to get her stomach pain/discomfort under control. She is miserable, which breaks my heart, and is missing a lot of school. The pain is also routinely waking her up at night, so she isn't getting enough sleep. So far her doctor has tried Ranitidine, Omeprazole, and an increased dose of folic acid, without success. Does anyone have any other recommendations? Have you or a loved one dealt with something similar and found something that helped? I would appreciate any feedback/suggestions. NOTE: She already takes her medication after eating and with a glass of milk. Thank you
  4. Thank you Jo for the warm welcome and information. I have read just about everything I could find on this site and found a lot of it very helpful. However, I am extremely nervous and worried about what the future holds. We have 1 more week until my daughter's appointment where I hope to have all my questions answered and receive good news. Until then, I will continue to search for answers to some of my questions. If anyone can help with the following, that would be very much appreciated. - What tests might they run on my daughter? Blood work? MRI? Cat scan? I know a biopsy is a possibility. - Are there any statistics on the effectiveness of certain treatments? I've read that methotrexate and steriods are common medications, but can't find data on their effectiveness. I am also concerned about potential side effects. - I am hoping the specialist can answer this, but I want to know what stage/how far along my daughters' disease is. Is there a way to tell? - I've read that it is difficult to differentiate between En Coup and Raynaud's and am concerned she may end up having the latter. Does anyone know of any way to determine what she has? I've read about differences in the tongue and occular issues, but that seems to be all I can find. Finding this forum and reading a lot of the threads has been very helpful, but also very scary. Taking this one day at a time... ~jena
  5. Hello - I'm new to the group. My daughter (9) was just diagnosed by her dermatologist with plague-type morphea. She has a 2x4 in dark patch on her forehead with an indentation that runs up into her hairline. After doing some research, it appears to be "en coup de sabre". She is going to see a specialist on August 27, but I am desperate to learn more about what type of testing she may go through as well as potential treatments and outcomes. Any information/advice would be greatly appreciated. ~jena
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