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About quiltfairy

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    Silver Member

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    mapleton , Iowa

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  1. My rheumatologist suggested that I put a good lotion on my hands; to use a large amount then put vinyl gloves before bed and keep them on night. They are much softer and my Raynaud's is much better also. If I am going to be outside I put vinyl gloves under my knitted gloves and also wearing mittens. Between the two my hands stay nice and toasty warm. Before I got scleroderma I worked in the cold, learning a lot about keeping warm.
  2. I use a lotion from body works; it was the best but expensive. After I get this tube done I am going to ask if my pharmacy salve works; some have told me I could use coconut oil.The stuff my doctor wanted me to use is too much money and I have used everything. The other thing my doctor said, always use rubber gloves or such when cleaning with chemicals. Good luck.
  3. Doing my hands with the lotion has helped.
  4. I have sore hands this year more than other years. My scleroderma is hitting me hard and it has been cold and stormy here. My rheumatologist suggested I put a thick layer of lotion on my hands, put on cotton gloves when I go to bed and all the lotion will be absorbed. It is doing the trick; my hands look much better and not as painful. I had a sore that he thought might turn into an ulcer and it is now gone away. I hope this can help others. I wear the gloves doing my daily routine and I am glad I gave it a try. Blessings to all.
  5. Yes I understand that they can train them to do most anything. I watched a YouTube video on it; a dog can pick up things drooped, but the one thing that impressed me the most was a dog that picked up a dime off the floor and handed it to his trainer. Look up service dogs on YouTube. Good luck.
  6. I have been doing research on getting a service dog. It has been interesting. I found that the retired police and and military personnel dogs go to an army base here and they give the dogs away. The cost is getting them home and any supplies or further training; they have some of the puppy training until they graduate from that program. Google how to get a service dog; there is a lot of information. Bless you all, Quiltfairy.
  7. I am back. I also get most anything that can go down my throat and at times it tries to go into my lungs; lucky it does come out with a lot of chocking and coughing .My pills come flying out; my son and I have learned to laugh and say that was a good shot! All the joking aside, it scares me. It helps to sit up for a half hour after I take my medications and also sleeping at a 45 degree angle. It was a little hard at first, but I got used to it. The scary part of this is when they did the upper GI my throat did not need to be stretched. The muscles are not w
  8. Yes that is helpful. I think that and part of it is the weather pattern keeps changing around here. One day it is warm, the next day it is cold and rainy. My body never hurt like this with the weather, although when I was not ill and having so many symptoms I was a semi truck driver and went in and out of fronts from one minute to the next the doctor decided I shouldn't drive trucks so they hijacked my CDL licence. I can still drive a car, but I only do that in town. Bless you each.
  9. My fingers have started to peel around my finger tips; they are not sore or itchy, but they feel a little funny. It is hard to explain, although at times I get a tingling or pin pricking on them. I hope some one can let me know what is causing this. Thanks.
  10. One site I get good information on most medical issues is WebMD. It has given me the best information on most things medical. Good luck with your search and it has photos of conditions.
  11. Hi, everyone that has just joined the Forums. To tell a few of you what I have gone through with my disease. It started in Canada after unloading a load of rails and throwing straps over the hay to secure the load. I was in the right place at the wrong time and I fractured my skull, broke my nose and neck. The doctors think that might have caused the beginning of the scleroderma and there are a lot of theories that cause scleroderma. The first test was on my legs, when that was done the doctors took 6 tubes of blood. The labs here got a partial and the blood was then se
  12. I got a a mortar and pestle; I found it on my other favorite web address Amazon. I am a prime member, they had several designs. It is food safety so it should work good and it also has a life time warranty.
  13. Like you I never fell much until my head injury. When I was still driving trucks I grabbed the grab bar that is on the side of the outside of the door; it is another one of the things that is there for driver safety. I grabbed it, then missed the bottom step. Believe me, that can go around the trucking world for a long time then. I hope you all have a great week, what is left of it.
  14. I would much rather be working. I was a professional truck driver going down the road, not much to worry about. I drove a flat bed truck and I was known for my friendly demeanor and to never give up. I owned my truck, but I started with not being able to load my truck, then I got a head injury and things went down from there. Because of the scleroderma I lost my truck and a lot of money, so if you are reading this it gives you an idea of the cost. Now I sit and watch tv and I do what I can and if others don't like it they can go jump in a lake. I need help with most everything I do
  15. I think I have the best son in the world. We were out trimming weeds from around the air conditioning unit. I was pulling the little ones that came out easily and I really cannot tell any one what happened. Luckily my head hit the lawn instead of the sidewalk; I missed the sidewalk by inches. My son got me into the house and sat with me until he was sure I did not have a concussion. I'm so thankful that I had him. I send you all a blessing. I would love to hear stories of some one or thing that touched your heart. Oh, I am ok and headed to bed.
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