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CrankyGoat

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Everything posted by CrankyGoat

  1. Thanks Jo, especially for the links - it is nice to see how active these forums are and there is an abundance of info available ... having the right links to find the info I am looking for is a great help. Much appreciated, CrankyGoat (aka Steve)
  2. This is great information, and very inspirational - something we very much needed right now. I can’t thank you enough for both your kind words and thoughtful response. We are fortunate that our family physician is very proactive and managed to connect my wife with a good Rheumatologist. We live on a small island off Vancouver Island but are close to Vancouver, BC which apparently has a well respected Scleroderma Clinic which we are hoping to get involved with asap. My wife is scheduled to get a pulmonary function test soon, looking at getting “baseline” tests for everything under the sun right now. She also has full blown Raynaud’s Phenomenon - so looking at merino wool layering and plan for a few “hot and sunny” vacations in the near future. I totally agree with your great attitude of "do it while you can because you never know when you can't." It is so very, very true... Warm regards, CrankyGoat (aka Steve)
  3. My wife has just been diagnosed with Scleroderma (Three Weeks Ago - July 2014) and it appears will never be a 'runner' again; has to be careful what food she now eats; and our mountain climbing is tempered by how well she is breathing that day. It truly breaks my heart and frustrates me to no end - I'm here because I want to learn more; learn how to support and comfort her; learn how to make her comfortable; and, most importantly, learn how we can 'make the best of it' and continue enjoying life to the fullest! She is a Foodie for sure, currently trying the AutoImmune Diet which advises to cut out all 'nightshade' vegetables - most of which is what she loves eating the most, such as fresh tomatoes, peppers, etc. She has so far discovered that tomatoes and almonds, of all things, really cause a reaction and increases heartburn / acid reflux big time. However, many other items seem 'safe' and still allows a great variety of recipe options to play around with. What we have plenty off, and which we both love is Sockeye Salmon - truly a favourite fish of ours and when grilled on a cedar plank in the BBQ is a food that rivals all food :woohoo: I stumbled upon this forum but did not look like any recent posts? Is the Sclero Kitchen still active? If so, any regular recipe swapping? The 'little things' really do count and I plan to start a new habit with my wife, I have promised her to discover, cook, AND clean-up a new recipe every week-end. There is a great recipe on Foodily.com and we plan to start a Recipe List dedicated to Scleroderma friendly ingredients (if there is even such a thing, as I said - my wife was just recently diagnosed). If interested in the website just send me a personal message regarding same. My first official meal planned for this new ritual of ours is a variation of the California Grilled Chicken, Avocado and Mango Salad - I'm replacing the chicken with cedar plank grilled sockeye salmon. Here's a link to my album on Recipe Ideas.
  4. CrankyGoat

    Recipe Ideas

    My wife has just been diagnosed with Scleroderma (Three Weeks Ago - July 2014) and it appears will never be a 'runner' again; has to be careful what food she now eats; and our mountain climbing is tempered by how well she is breathing that day. It truly breaks my heart and frustrates me to no end - I'm here because I want to learn more; learn how to support and comfort her; learn how to make her comfortable; and, most importantly, learn how we can 'make the best of it' and continue enjoying life to the fullest! She is a Foodie for sure, currently trying the AutoImmune Diet which advises to cut out all 'nightshade' vegetables - most of which is what she loves eating the most, such as fresh tomatoes, peppers, etc. She has so far discovered that tomatoes and almonds, of all things, really cause a reaction and increases heartburn / acid reflux big time. However, many other items seem 'safe' and still allows a great variety of recipe options to play around with. The 'little things' really do count and I plan to start a new habit with my wife, I have promised her to discover, cook, AND clean-up a new recipe every week-end. These photos related to the recipes I have experimented with.
  5. CrankyGoat

    Recipe 1

    From the album: Recipe Ideas

    My first official meal planned for this new ritual of ours is a variation of the California Grilled Chicken, Avocado and Mango Salad - I'm replacing the chicken with cedar plank grilled sockeye salmon. Original recipe can be found here: http://www.foodily.com/r/uZew3bmCi-california-grilled-chicken-avocado-and-mango-salad-by-skinny-taste Ingredients: 1 large sockeye salmon filet, 1 cup diced avocado 1 cup diced mango (from 1 1/2 mangos) 2 tbsp diced red onion 6 cups baby red butter lettuce 2 tbsp olive oil 2 tbsp white balsamic vinegar salt and fresh cracked pepper to taste
  6. Hello folks, I am a definite newbie here so will first explain who I am and then ask a few questions which I am hoping someone could answer. I truly live a 'good life' out here on the pacific west coast, often hiking in the mountains of British Columbia with my wife and our ten year old german shepherd. My wife, who truly is my best friend, and I have been happily married for well over thirty years! I sincerely want to enjoy another active and adventurous quarter century with her. She is a vibrant 'lover of life' - top in her class marathon runner; a true foodie who enjoys gourmet meals and fine wine; and my favourite mountain hiking partner. However, she has just been diagnosed with Scleroderma (three weeks ago - July 2014) and it appears will never be a 'runner' again; has to be careful what food she now eats; and our mountain climbing is tempered by how well she is breathing that day. It truly breaks my heart and frustrates me to no end, as I want to be able to "fix" this for her and I am unable to do so - I'm here because I want to learn more; learn how to support and comfort her; learn how to make her as comfortable as possible; and, most importantly, learn how we can 'make the best of it' and continue enjoying life to the fullest! So, one of my first question is this, can you travel with Scleroderma? I mean via airplane, as I'm worried the air pressure changes may impact her negatively? Also, is travel insurance now going to be an issue? Anyone from Canada with experience in this - let me know of any good travel insurance companies you would recommended. I have many, many other questions - but will take it one step at a time, my wife is a very proud person and I know this has hit her 'ego' very hard - this time last year she won first place in a rugged cross country half marathon and was so very, very proud of that accomplishment ... now she is told that she will likely never be a 'runner' again, very tough for her to absorb and to the both of us this diagnosis seems so surreal and absolutely unfair ... as I'm sure many of you, if not all, had felt exactly the same way when you or your loved one was first diagnosed.
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