A little over 2 years ago I was diagnosed with ILD (UIP by lung biopsy\NSIP by radiograph) associated with SSC characterized by +anti-Scl 70 Ab, Raynaud's and mild sclerodactyly. To date my lung fibrosis has not progressed; in fact, my PFT (Pulmonary Function Test) results indicate that my capacity has actually improved. I am doing very well and have every reason to believe that I will continue to thrive and live life to its fullest. I like to think I am one of the lucky ones who has a slow progressing form of lung fibrosis.
Annie, I just joined this forum and was looking around when I came across your first message. I was excited to see someone who lives in Green Bay, has Scleroderma and lung involvement. I to live in Green Bay! I have been recently diagnosed with Scleroderma and I am scheduled to see Dr. M. E. Csuka in Milwaukee in two weeks for a second opinion. I actually was diagnosed with Interstitial Lung Disease a year ago. The Scleroderma symptoms just started to appear in November (Raynaud's). I keep looking for answers and find there are few. I hope you respond to my message. I would love to get to know you. Candace