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Ninagrrl

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About Ninagrrl

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    Newbie

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  • Location
    Idaho, USA
  1. Multiple autoimmune diseases run in my family. Psoriasis, Crohn's disease, ulcerative colitis, fibromyalgia, rheumatoid arthritis, juvenile arthritis, diabetes and possibly celiacs. On top of all of that, my son has hypotonia (low muscle tone), skeletal dysmorphia (odd shape of the skeletal system), severe global delay (about a year, developmentally), and we are pretty sure he is somewhere on the spectrum. We were told he has a neurogenetic disorder but so far all tests have come back negative for anything. My daughter had complications after she was born, combine that with my sons med
  2. Right now my dermatologist is treating me with calcipotriene. but other than helping with the insatiable itchiness, my plaques are currently rapidly spreading. For 10 years I had random spots and unexplained joint pain. The spots were few and new ones only came up when the old ones were on the out. Most of the time I'd have 1 spot for 2 - 3 years and then there would be overlap for a few months. Then during the end of my pregnancy, there were complications and I think the stress triggered it to ramp up. Now I have 3 spots from my wrist to my elbow that range from dime to half dollar size and
  3. I was recently diagnosed with Scleroderma but have had skin darkening and hardening symptoms for almost 10 years (I'm 32). I went to see a dermatologist in the beginning of August and they immediately did a skin biopsy of two of my lesions. 2 weeks later I got the diagnosis of Morphea. I was told that it seems to be only skin related even though I had expressed having GI issues. They gave me a prescription for calcipotriene. Since then I have done some research and feel like I need to see a different doctor about whether there is more involvement than just skin deep. I have chronic fatigue bu
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