uknlv18

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Posts posted by uknlv18


  1. I had a similar thing, I just got diagnosed with Limited Systemic Scleroderma about two weeks ago, have had Lichen Sclerosis for years. After 2 months of tests and hospital stays, I thought well at least I know what I got and there is something they can do for me Yay!

     

    Well so much for that, :lol:, I got told yep we knew this is what you had all along but you are lucky it could be a lot worse. I thought you must be kidding, I have constant pain in my abdominal muscles whenever I bend over or try to get dressed, I am so tired I can hardly think half the time, my fingers have gotten so tight I can hardly write my name and do things like I used to, my cuticles crack and bleed, my Raynaud's causes my hands and feet to go numb constantly. I can't walk more than 30 metres without severe pain, and I recently lost my job due to my sickness. Well lucky me! :lol: makes you despair and when I called to ask about the pains I got told that at my age I should expect some pain as common wear and tear. So here I sit, stuck in my house, depressed, and thinking what if I wasn't so lucky. :(

     

    Jean