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Everything posted by honeybee

  1. Hi Shelley Thank you for sharing with me. I think your idea about the medical coverage is a good one, thanks. I've now done some exploration into this. I've also checked out car options and think this is the best idea to not have to rely on public transport. I did consider other places in the USA like Florida as they'd be warmer, but (it sounds a little bit silly to me even now) I really wanted to go somewhere that has tonnes of interesting things to do all the time and I thought Washington DC and its surrounds in Virginia/Maryland would meet that criteria. I also have an uncle there so it will be nice to meet some family. I did think though when I posed this question to the forum that if it really looked like it would be difficult to go to the cold, I would go to Florida instead. But I feel I have been given enough hope that I will be able to make it in the cold and that in itself will be an adventure for me as I never see snow or very cold weather. Thank you! Honeybee
  2. I never considered the grey miocean ! I never see grey....our car license plates say 'Queensland - The Sunshine State'. But we are living in a drought so you win some and lose some. I'm glad to hear you went to the beach when it was cold. I work near a bay and go after work for a walk and it is so beautiful so I'm glad that water can be beautiful in the winter. Can you bundle up enough to be outside your car at the beach? I hope so. Greypilgrim256, I'm so glad you are saying the winter is beautiful. Thanks for the reassurance that there aren't many power outages. Amanda, thanks for letting me know about the car. I guess for many years prior to being diagnosed with Scleroderma and Raynaud's I had a dream to go live and work in the USA as this is where my family is from. My parents migrated to Australia from the USA to Australia shortly before I was born and I grew up with no family other than my parents and siblings and being raised with funny accents, eating funny food different from the Australian culture. As an adult I realised what I grew up that this 'feeling funny' was another culture and I want to immerse myself for a little while in this culture. When I first was diagnosed five years ago my scleroderma was working so rapidly to limit what I could do I thought that in the near future I would need to be cared for practically. I have responded so well to medication that I feel I have my life and mobility back that if I could find a way to survive with Raynaud's in the cold I must go on this adventure. I feel that the assurances I have of layering in good products will do the trick. At least I will know that sunny warm Queensland will be waiting for my return and should I not be ok in the cold, I can just jump on a plane and come home! Thanks everyone. It has been so delightful to ask questions and have people share their wonderful knowledge! honeybee
  3. Hi Joelf, miocean and quiltfairy Thanks so much for your replies! It is so wonderful to receive support in this forum! Joelf, thanks for the link to the Raynaud warming tips - I thought I was ok with my strategies but it says NOT to rub your hands together and this is the first thing I do if I need to warm my hands up. Not anymore!! Miocean, this is great information you have shared. The layering sounds like a good idea. I am a little concerned about having to buy a new wardrobe so that I can fit all the layers underneath! In Brisbane, I have heating in my home and can heat at work, but generally where I live there is no heating in people's houses and at the coldest our winter tends to get in the day 16 degrees celcius (60.8F the computer tells me) I will have to already where thermal underwear to go to a friend's house. If it becomes say 4 degrees outside (39F) or worse in the USA I'm concerned how many layers I may need to wear and whether I'd be ok to stand at a bus stop waiting for public transport without getting cold and losing maybe my nose! I am glad to hear of your staying warm during a week of power outage and that gives me some hope. I love that you said winter is so beautiful and refreshing and I hope I can turn my fear into excitement at the prospect of enjoying it. Quiltfairy, this is great to know you stayed warm with candles and an oil burning lantern. Again, this gives me hope! I think I may need to invest in a goose down coat. That's great to hear about thermal gloves. I had tried searching for warm gloves but was only finding bulky skiing gloves so I will now look for thermal gloves. It is wonderful to hear you are out and about in winter and that you are ok. Surely I will be ok too! Thanks again for these responses. And thanks for the encouragement to follow my heart and do what I want while I can. :) honeybee
  4. Hi I currently live in Brisbane, Australia and wish to live in Virginia/Maryland for 3 months mid September to December in 2015 (or longer if I like it). I experience chill blains even in our very mild temperatures and have to rug up in gloves and coats for our very mild winters to avoid Raynaud's attacks. I have dreamed for a long time of coming over to the USA but am unsure of how I will handle the cold. My rheumatologist told me it is a bad idea and I'll be cold (!) and my dermatologist told me to go live and they could give me medication to help with my circulation. Obviously, there are plenty of people who live with Scleroderma and Raynaud's who live in Virginia/Maryland. Are there any tricks/tips? Special wool lined boots? What if there is a snow storm and you have no power? How do you stay warm? What do you do when places are heated if you've dressed with thermals and warm gear? How cold do you get walking somewhere? Do you have to own a car? Thanks in advance for any assistance! Melissa
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