Jump to content
Sclero Forums

evelynet

Members
  • Content count

    3
  • Joined

  • Last visited

About evelynet

  • Rank
    Newbie

Profile Information

  • Location
    Fife
  1. Mycophenolate Mofetil

    Hello all Thank you for taking the time to reply to me. As I have said I will be seeing my general practitioner In early January before starting on Mycophenolate Mofetil and will get back to you with problems or otherwise to let you know how I am getting on with it. I would like to wish Judyt all the best with your future treatment and hope that all turns out well. Best regards Evelynet
  2. Mycophenolate Mofetil

    Hello Thanks for the quick reply Jo. Judy, I spent many years in pain with diverticular probably having scleroderma but not diagnosed at this time. Six years ago I spent three weeks in hospital over holiday with a fistula between bowel and bladder with part of my bowel being removed resulting in a colostomy. I have been offered a reversal but they will give no guarantee of it working and things could be just as bad as before so I am happy to stay as I am. I cope fairly well with the limited mobility of my hands and wrists. We still caravan and I have flown over to New York once and not had any problems though accidents do happen now and again. Lots of food which I enjoyed before is a no no though as it isn't compatible with the system now. Hope that this helps. Good luck. Evelyn
  3. Mycophenolate Mofetil

    Hello I am new to this forum and would like some advice on taking Mycophenolate Mofetil. I am a 70 year old non smoker and drinker and have always been fit and active. I was diagnosed with Scleroderma and Raynauds four years ago and have been having regular hospital check ups ever since. Also to complicate things I had a colostomy a few years ago due to a fistula between my bowel and bladder. At my latest hospital visit this past week my consultant suggested that I start taking Mycophenolate Mofetil but I will not be seeing my general practitioner till early in the new year so won't be starting till then. I was therefore wondering if anyone who is on this drug can give me some information on how they are dealing with it as I am a bit nervous of some of the possible side effects. This is due to the scarring of my lung and lung function getting slightly worse.
×