evelynet

Hello all Thank you for taking the time to reply to me. As I have said I will be seeing my general practitioner In early January before starting on Mycophenolate Mofetil and will get back to you with problems or otherwise to let you know how I am getting on with it. I would like to wish Judyt all the best with your future treatment and hope that all turns out well. Best regards Evelynet

Hello Thanks for the quick reply Jo. Judy, I spent many years in pain with diverticular probably having scleroderma but not diagnosed at this time. Six years ago I spent three weeks in hospital over holiday with a fistula between bowel and bladder with part of my bowel being removed resulting in a colostomy. I have been offered a reversal but they will give no guarantee of it working and things could be just as bad as before so I am happy to stay as I am. I cope fairly well with the limited mobility of my hands and wrists. We still caravan and I have flown over to New York once and not had any problems though accidents do happen now and again. Lots of food which I enjoyed before is a no no though as it isn't compatible with the system now. Hope that this helps. Good luck. Evelyn

Hello I am new to this forum and would like some advice on taking Mycophenolate Mofetil. I am a 70 year old non smoker and drinker and have always been fit and active. I was diagnosed with Scleroderma and Raynauds four years ago and have been having regular hospital check ups ever since. Also to complicate things I had a colostomy a few years ago due to a fistula between my bowel and bladder. At my latest hospital visit this past week my consultant suggested that I start taking Mycophenolate Mofetil but I will not be seeing my general practitioner till early in the new year so won't be starting till then. I was therefore wondering if anyone who is on this drug can give me some information on how they are dealing with it as I am a bit nervous of some of the possible side effects. This is due to the scarring of my lung and lung function getting slightly worse.