Dani

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About Dani

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    Newbie

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  • Location
    Louisiana
  1. Joelf, I understand having to monitor my sense of humor around my mother. It has created quite a few misunderstandings. Kathy D. I also thank you for the giggles.
  2. From the album profile

  3. Pain, like disease, is relative. It makes no sense to compare your pain to mine or to hers or to his. The pain I feel is only better or worse than the pain I personally have known. I can and do emphasize or sympathize with you, but I cannot compare levels of pain with you. Like the others who have posted, I understand well-meaning people sometimes say silly things. I am guilty of it myself. I do wish your physician had given you a real answer to your question, though. I, for one, truly would like to know the answer after having read a bit of your story. I can't even imagine how much more so this is true for you. Dbig
  4. Thank you so much! I appreciate the welcomes, links, and inputs you shared. I truly hope you get as much from as you give to these projects. I have been reading the forum posts and see a lot of responses from you. Again, thank you.
  5. Hi. Autoimmune diseases run in my family. So after being diagnosed with Raynauds,fibromyalgia, chronic fatigue syndrome, IBS, arthritis, peripheral polyneuropathy, and a host of other disorders, it was not a surprise that my bloodwork came back positive for scleroderma antibodies and inflammation. My oral surgeon, who I am seeing for possible oral lichen planus, also viewed the initial results and asked if I knew I have scleroderma, By the way, I have also started bruising quite easily and am very slow to heal. My general practitioner sent me to a rheumatologist who repeated the bloodwork but also ordered other blood tests I do not understand. I viewed the results. The scleroderma and inflammation results are almost identical to the first time. However, I received a call from the rheumatologist's office saying that the results are negative for scleroderma but show inflammation due to neuropathy. When I asked why these results rate as a negative but the same results from my general practitioner were listed as positive, I was told that false positives are possible and that I would be sent for x-rays. Has anyone else experienced anything like this? Would you please share any insights, if so. Thank you