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Everything posted by NickF60

  1. Hi all, thanks again for your comments. I spoke to my general practitioner a few days ago and she didn't have all the blood results but the ones she did have were normaI. I will speak to her again shortly to confirm the remaining results, but she said she would call me if anything interesting showed up, so I'm guessing that hasn't happened. One thing that has happened is a new Raynaud's attack. After my rheumatologist appointment last week I was almost convinced I didn't have Raynauds - most of the 'events' I reported were in a finger which had previously suffered trauma. I suppose I heard what I wanted to hear - "you probably don't have Raynauds". However, last night I went for a short walk. Temperature was about 14C, 57F, and I became slightly chilly in the body as there was a breeze. As I walked along I was aware of a strange feeling in both my small toes, it kind of felt like my socks needed adjusting. When I got home the small toes on both feet were deathly white and numb. A little bit of manipulation got the blood flowing quite easily, but as far as I'm concerned that was definitely Raynaud's! I am going to report back to the rheumatologist and tell him about that episode. My appointment is in two weeks. I do worry how this is going to pan out, but at this stage I suppose I should take heart from the fact that blood results and nailfolds are normal. I have read some papers that say Primary Raynaud's can be a legitimate diagnosis, even in older patients (I am 55), I'm hoping that nothing else develops! Nick
  2. Hi all, thanks to everyone who has looked in since I was last here - it' appreciated! I saw the rheumatologist today and it's a case of so far, so good. We don't have the blood results yet but the physical exam went well. He did a few things, including a close inspection of my nailfolds. All normal was the conclusion. One interesting thing was that we talked through my Raynaud's episodes in detail and the doctor is of the opinion that I may not actually have Raynaud's. The one exception is my right index finger - I described to him how it turns pure white, and that there is a very clear distinction between white skin and pink skin part way along it. He agreed that that sounds like Raynauds, but this particular finger is one that suffered trauma many years years ago. I had an accident with a scalpel blade that went very deep and damaged a lot of nerves. He therefore discounted that one and asked me to describe exactly what happens to the others. To cut a long story short, his view was that what I was describing was a fairly 'normal' response to cold, a response of someone that doesn't handle cold conditions very well, but not the extreme response expected in a Raynaud's sufferer. He may be right. He did agree that circulation in my hands is a little sluggish (he talked about capillary refill times etc), but not dreadful. The broad conclusion was that I may have some ongoing health issue, but it's probably not in the rheumatology domain. The plan is to review once all the blood tests come back and take it from there. I will keep you posted! Nick
  3. Hi everyone, many thanks for all your replies, it really is appreciated. I hear what you say about not self-diagnosing, but it looks to me like there's other things happening to me, not just Raynauds. When I exercise or drink alcohol my hands and feet flush red and I get a burning sensation, particularly the feet. It's not too painful at the moment, but I believe this is erythromelalgia. Three days until I see the rheumatologist, and I'm getting a bit stressed if I'm honest. I hate to think what genes I've passed on to my kids, and they're still so young. I need to stick around for a while yet! Appreciate your support everyone Kind regards Nick
  4. Hi all, really glad to have found this place as you all seem very knowledgeable and helpful My situation is that I've recently had numerous Raynaud's episodes affecting multiple fingers. Prior to that I had less frequent episodes involving just one finger (always the same one). In the last few weeks my hands often look flushed/red and there is a marked blanching effect when I touch them - they turn white when touched and it takes a few seconds for them to return to normal. My hands are still changing, and right now they look mottled reddish with paler areas. My toes are a bit red too. I'm in the UK so I went to my general practitioner yesterday. She ordered some blood tests which will be done next week. She said a referral to a rheumatologist looks likely. I have to agree! The way my hands and feet look I am sure I won't come back with a clean set of blood results. In my mind I have scleroderma, or something very close, and it's worrying me sick. I am 55, but my family are still young and I fear for the future. I have a bit of general health anxiety. At the first sign of trouble I tend to google everything, and the results can be very frightening. That said, I am unlikely to stop researching online as gaining knowledge makes me feel a little more in control. There's lots more I could say but I'll leave it there as it's my first post. Stay well everyone Nick
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