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Everything posted by barefut

  1. barefut

    Pulmonary Hypertension Symptoms

    Jen, So sorry for the loss of your friend. 34 is too young! My heart goes out to you and his family. Take Care, Love, Barefut
  2. barefut


    Jackie, I had my gallbladder out 2 years ago. My symptoms mimicked a heart attack. I was in and out of ER a couple of times before they figured out it was gall bladder. I had a gall bladder attack that was as painful as passing my kidney stones. I remember ER doctor saying that he was "impressed with my level of pain" Impressed? I said, I'll be impressed if you can make it go away. So sorry you are feeling rotton. If it is your gall bladder, just have it yanked. It's worth it. I've been kicking around the idea of trying a gluten free diet. Maybe we can try it together. Glad to hear your innards looked good. I get mine looked at in 10 hours and counting.....Counting the hours til I can eat again! I've had the hunger headache all day. Well, gotta "run" ;) (sorry) :rolleyes: Love, Barefut
  3. barefut

    Endoscopy Today

    Hi West, Glad it went well for you. Mine is Friday, along with my colonoscopy. It's Wed. eve. and I just had my last meal until Friday afternoon-ish. I'm pretty sure clear liquids won't keep me from fainting from hunger :o :rolleyes: I'm going to make sure they have me totally out for it. I was gagging and wretching through my bronchoscope. Don't want to do that again if it's not necessary, and I'm pretty sure it's NOT! Take care, Barefut
  4. barefut


    The skin on my face is so tight I couldn't pull down my lower eyelid to get something out of my eye. I get blemishes on my chin and around my mouth that are hard to treat and heal. I exfoliate 3+ times/wk. I only lightly moisturize when I'm dry and I don't wear makeup. Just wondering if anyone sees a dermy? Barefut
  5. barefut


    Ron, What is PUVA? B
  6. barefut

    Food Getting Stuck In My Throat

    Janey, I have always had that tipping policy too! Barefut
  7. barefut

    Bad Day For My Gi

    Thanks guys, Margaret, Had my gallbladder out a couple of years ago and have had stones too so I know it's not those things. Thanks for your suggestions though :) Barefut
  8. barefut

    Bad Day For My Gi

    Been having the typical IBS problems today as well as some new symptoms which have been recurring for about the past 2 months or so - needle like pain below my rib cage which occasionally shoots across my torso. It's got me worried about what's going on in there. Also, I feel like I must have put on about 25 pounds but the scale says the same weight I've been for years. What's with this sharp shooting stabbing needle pain? At least I have my endoscopy and colonoscopy Friday so I won't have to wait long to find out something. I haven't been expecting anything to be too horribly wrong in there but now with these new pains, I don't know....... Good Night, Barefut
  9. barefut


    Kathy, :huh: :blink: :P :rolleyes: Barefut
  10. barefut


    kathygirl, That's funny :P Did he know you have scleroderma? Sorry you wasted your time and money. Barefut
  11. barefut

    If I Had A Dollar For Every Missed Diagnosis!

    Oh Mike, don't get me started! It's late and I don't have enough time..... For too many years I was seeing a doctor whom I was not happy with. (Hey, I said it nice!) Anyway, one of the "best" of the many mis-sed diagnoses was when I told him of my pain and stiffness and loss of range of motion and he mumbled something that I swear he just made up and told me that some people are just stiff after sitting for awhile, it's not a big deal. That was the last straw with him. Also, he diagnosed my Raynaud's as Buerger's Disease, which is most prevalent among middle aged, Middle Eastern, men who are heavy smokers. Last time I checked I was an American, non smoking, woman with a "probable lupus" diagnosis. Now wouldn't a doctor worth his degree at least consider Raynaud's first since Raynaud's piggy backs lupus? Well, I could go on but it is late for me. Maybe I'll add more later. Take care all, Barefut
  12. Does anyone else experience chronic hoarsness or loss of voice? It is SO annoynig to be on the phone or in face to face conversation with someone and have to be constantly clearing my throat or coughing to try to get my voice back! People think I'm sick and take a few steps back. I'm also bummed to not be able to read aloud to my kids without a lot of annoying throat clearing. It makes it a not very pleasant experience. Is there any info out there on vocal cord damage from reflux? Thanks, Barefut
  13. My lower back has been giving me grief again! Sitting on the hard bleachers at my son's baseball game for 3 hours lastnight didn't help matters. Today there's no position to be in that doesn't hurt. Took 2 Alieve with no relief. Sitting is especially uncomfortable. I am frustrated to tears. I have SO much work to catch up on. Since I had to be gone all day for 2 days, nothing got done and I'm swamped with dirty laundry, dirty dishes, and a fridge and a pantry that needs to be cleaned out. I have no one who can help me with these things. I hate days like this. To top it off it is beautiful and sunny today which only makes me more frustrated because I would LOVE to work in my gardens and yard. WHY ME?! Just got an appt withARNP in two hours. Maybe my back and this day can be saved? But even if I get pain relief, I know I'll be told to just rest. Being alone is hard. How will anything get done?! My whole life is one step forward 2 steps back. Never any PROGRESS! Just had to be a crybaby....Thanks for listenin' Barefut
  14. barefut

    Back Pain Messing Up Everything!

    TJ903, That saying of your husband's did make me laugh. :P Thanks. I have not been to a pain mgmt doctor. I injured my back at work about 10 years ago - was told a bulging disc. It's given me troubles off and on ever since. Doesn't help when my hips chime in at the same time. Went to see ARNP and he said to try 2 Alieve 2x/day and if I had breakthrough pain to call him this weekend and he'd call in an Rx for some Tylenol withcodiene. I did have some relief later in the day. I will be sitting on ice today too. Thank you for your kind reply :) Thanks Sweet. You're so......."sweet" :rolleyes: Sam, I HAVE seen others with those seats and I AM going to get one too! Yes, some of them look pretty fancy and comfy. I do get up and stretch and walk around a lot which helps. Kathygirl, ' Thank you for reminding me what is most important. I do also need to be reminded to tackle things with that "one bite at a time" mindset. That is hard for me. I have always been a, "get it all done all at once - and right now" kind of person. It's hard for me to leave things undone or a mess. My father raised me to "work first, play/relax later" HOWEVER, he was not a mom and a mother's work is NEVER DONE. I still need to find that balance. Nan, Hubby moved out last August. We don't see him at all, so no help there. Thanks for your good vibes. I got them. :) Have a Good Day All, Barefut
  15. I rarely ever buy magazines, especially those at the checkstands, but I saw a fitness magazine with an article about boosting metabolism and I tossed it on the conveyor belt. I was just now reading it (Yes, I SHOULD be asleep already! :rolleyes: ) and it has a story about 3 sisters, one who has scleroderma (sounds like diffuse systemic). The story was not about scleroderma but about the sisters' struggles with their health and the power of optimism and positive thinking. The description of scleroderma was accurate but not indepth. It described her symptoms and how she suffered with it. I was pleased to see the mention of sclero. Any little bit of any type of media attention is good for awareness. I have started mentioning scleroderma to anyone who asks me about my health. I had that chance today in the radiology waiting room. It actually feels good to spread awareness and people are usually genuinely interested. I guess I'd better buy some bracelets. They also make good conversation starters. If anyone wants the name of the magazine I will PM it. Good Night, Barefut
  16. barefut

    Magazine Story Mentions Scleroderma

    Janey, I know what you mean about that uncomfortable silence. With some people, as soon as I say the word "scleroderma", they look shell shocked. I think because it's such an "ooey" sounding word that people automatically think I'm contagious or something. Boy, to those people I can't explain fast enough what its all about and that they can't "catch it". A mother of one of my preschool kids asked what all my out of town doctor appts were for (because I've had to cxl preschool). I thought, "Good I can educate another person" but she was one of the shell shocked ones and was too distracted by the kids to hear me out, so she left in a hurry. I hope she comes back! I remember back when we thought I had lupus and my hair was thinning, I mentioned it to my hairdresser and the FIRST thing she said as she pulled her hands away from my head was, "Is it contagious?!" I could tell no amount of explaining was easing her mind. It was the quickest and worst haircut I ever got. AHHH life with chronic illness....so challenging in more ways than 10.
  17. barefut

    Vocal Cord Damage From Reflux?

    OH MY ######! NO WAY ERIN! I printed out probably the exact article lastnight and was sitting here with it in my lap while I was reading your reply! TOOOOOO Creepy weird! Yes, "Less well recognized manifestations of Systemic Sclerosis... Thyroid involvement, Impotence, Testicular fibrosis, Bladder invovlement, Carpal tunnel, Trigeminal nerve palsy (and these last two which I think may affect me,) Periodontal ligament reabsorption and vocal cord infiltration" I believe my vocal cord involvement is not due to acid reflux because Omeprazole controls the acid and I very rarely experience reflux anymore. I saw mention of thyroid involvement causing hoarsness and deeper voice as well. Can't wait to get it sorted out and HOPEFULLY get it treated if it CAN be treated! I know there are a few people who wouldn't be sorry to hear my voice go but I'M not one of them! I'll have article in hand at my May 1 appt with rheumy. So glad I found it. Thanks for allyour replies everyone! Barefut
  18. Hi Guys, I was wondering.....I have seasonal allergies and have been known to snore (so I'm told) in addition to having mild-moderate ILD. A few recent days in a row (high pollen counts) I've woken up feeling like I never even slept and I couldn't shake the groggy, hung over, thick-headed, feeling all day. (I had not taken any allergy meds or any other meds than my usual ones.) Do any of you think that could be because I wasn't getting enough oxygen at night? Should I mention it to rheumatologist on May 1st so she can tell pulm doctor? I don't see him til Aug. 1. Thanks, GOING TO SLEEP NOW! Barefut
  19. barefut

    Domperidone (motillium)

    jlf, How cheap is cheap? Jackie says it cost her $125.00 That's not cheap to me. I'm not sure I'm gonna like my gastro doctor and/or he's not gonna like me. I've learned to not just "do as I'm told" by doctors, but to investigate and get second and third opinions. He seems like a dictator. I'll bet you if I go back to him with my reasons I don't want to take it, he'll scold me for researching the drug and poo-poo the studies. I had uncontrollable jaw jerks taking Reglan so that's not an option. I just don't think I NEED to be on anything right now/yet. My problems aren't that bad. Thanks for your replies. I welcome more! Barefut
  20. barefut

    Dave Is Really Sick

    YOU GO DAVE! Hang in there and go home soon! Still rooting for ya. Barefut
  21. barefut

    Dave Is Really Sick

    Will Do Mike. Barefut
  22. Do any of you ever think about what you would do in a catastrophic emergency if you could not get your medications? Since we are only allowed to purchase prescriptions from our neighborhood pharmacy one month at a time, that worries me sometimes. At least I can stock up on Prilosec. That is the one I truly could not cope without for even 1/2 day. I am required to put together an emergency supply of essentials as part of the requirements for licensed daycare. It made me think of my medications. I could not take care of anyone else if I did not at least have my Prilosec (and my Felodipine is a close second). That is scary for a single mom who cares for other's children to think about. I have never spent a lot of time thinking about catastrophic emergencies or preparing for them just in case. But to become licensed for daycare, I have to and I actually have always wanted to get together a proper supply of things. Anyway, just wondering if anyone else thought of the same thing and if anyone had any ideas or solutions. I know I can get 3 months at a time if I mail order but then one has to have a credit card and then of course you have to pay the finance charges.....I guess ya gotta do what ya gotta do......I've heard that somewhere else before...... Take Care, Barefut
  23. barefut

    Sad News, My Mom Passed Away

    Karen, So sorry to hear your sad news. Keep your family close in your time of sadness. Lean on each other. And you can lean on us too. May your happy memories of time with your mom fill the hole in your heart. Best wishes, Barefut
  24. barefut

    Washing The Dishes

    Oh Yes! Paper plates and cups whenever possible is the way to go! Especially when you have 5 kids (only 2 my own) to feed b'fst, lunch, dinner and snacks. I even use paper towels for plates for sandwiches, some snacks and toast. Ya gotta do what ya gotta do.... Barefut
  25. barefut

    Just Complaining

    Well Hi Guys, (gals :) ) The day after this post I went to bed at 8:30 right after my kids fell asleep. It was still light outside! I NEVER do that! It felt good. I slept good. Must have gotten about 9 hours sleep and did much better the next day. I have also been having wierd, vivid dreams and I've woken up with chapped lips and my (almost) 5 year old has been snoring and having the chapped lips in the morning too. We both have seasonal allergies so we're probably breathing through our mouths and I may not be getting enough 02 when I'm sleeping, maybe that's partly why I've been SO tired. Hi Carrie, Yes, Prilosec has been very, very good to me. I take the generic "Omeprazole" now. I could not live without it. The reflux and heartburn would be unbearable. Barefut