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jennuwhine

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About jennuwhine

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  1. I've been having breathing issues, it's gotten hard for me to breathe, but just got an x-ray, they said no problems. My blood pressure has been going crazy, low and then super high(a few days ago it was 220/180.) At times my heart beat is irregular. Still waiting to see a rheumatologist though. I just keep wondering how good or bad it is. Lol. I know there is some kind of lung involvement though. It's either scleroderma, Raynaud's or lupus related. I will be looking this up and hoping I don't have it. Hope you get better really soon and forever.
  2. Not yet. I've been calling, but I keep getting the machine. I'll try again tomorrow, and if nothing, I will be going to the office. Thanks for asking.
  3. Thank you so much. I will check it out. No, I just found out about the scleroderma, so I have not yet even seen a rheumatologist for that issue. Waiting for my referral to go through. I imagine it's best to see an expert because of how rare this is. I'm very surprised that a family doctor in a small town even knew to check for it. All my family members will be seeing him from now on. Thank you for the welcome.
  4. She does have a way with describing the feelings and thoughts we go through. I don't hold it against anyone if they can't handle being around this illness. I really don't blame them. I remember what it was like to be healthy and to want only the best in my life. How it felt to have no understanding of the pain a disabled person goes through. I wasn't insensitive, or mean, I just wanted the fullest, happiest life I could have, and my empathy would make that hard to do around suffering. Now that I am a part of this club of suffering, I understand a great deal more and I can offer others what I have learned. People with and without illness. I have learned that I can't judge others because I can't feel their pain, whether it's physical, mental or emotional. I have learned that focusing on the things people don't understand, or any negative treatment, will only drag me down. I want to be happy for as long as I am here, so I will focus on what I do have, and the friends who do care. I will be thinking of those whom I have lost, that they will find strength and understanding, so they don't miss out on the beautiful souls of those who have suffered and have learned and grown from it. Those who have found their hearts and strength from this constant battle and are so willing to share the hearts that they have found to empower others and give them hope. I choose to see the silver lining in the clouds. I choose to see the gold within the mud. I choose to see the heart behind the mask. (I see some beautiful hearts in here from what I've read. Nice to meet you.)
  5. Happy belated birthday. May you have many more full of love and hope.
  6. Hi. I was diagnosed with Systemic Lupus a few years ago after many years of searching for the right diagnosis. I was also diagnosed with Raynaud's and Hughes. Two weeks ago I was also diagnosed with scleroderma and need to be tested for Sjogrens and Fibromyalgia. There really aren't very many people with this. I was wondering why none of my lupus friends could relate to some of my symptoms. Now I know why. I haven't gotten the official word on which kind I have, but I strongly suspect systemic as I have pulmonary issues and my muscles in my upper arms are hard as rocks and don't work anymore. Has anyone found any natural treatments that help? I am allergic to most medications thanks to the lupus. Thanks and it's so nice to meet you all.
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